I am new here and started hormone the... - Advanced Prostate...

Advanced Prostate Cancer

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I am new here and started hormone therapy

KenDuchek profile image
29 Replies

I am 59 years old and had my prostate (PSA) test done in the fall of 2016. It came back at 40, after a biopsy found the Gleason score to be 4 + 3 (7). I had a Prostectomy at the end of May 2017. The surgeon was sure it was contained and that they got all the cancer out. After healing up for 7 weeks they did another PSA test which should have came back at or near 0, mine came back at 73 (this was higher that before surgery). After a CT scan and a bone scan they found the cancer had spread to his bones, liver and lungs. My cancer was also rated at 9 out of 10 in aggressiveness. I was devastated! The Dr's prescribed hormone therapy (Leuprolide) and I had my 1st injection on August 24th 2017. A few people had told me about Cannabis and I proceeded to get his Medical Cannabis card and started on the oil on September 5th. On November 23rd my PSA test came back at less than .1

Is it usual for the PSA score to fall that fast.

29 Replies
wrando profile image
wrando

I don't think a fast drop at the beginning is unusual. As for the Cannabis I would use straight oil with as much THC as you can tolerate. Indica strain will help you with sleep...go easy at first. It should come in a syringe... put a drop or two on a little piece of bread. Make sure you don't have to drive or much of anything else for a few hours.

KenDuchek profile image
KenDuchek in reply to wrando

thanks for the info. I did 70 gr. ofcannabis oil over 3 months.Thcwas 77% and cbd was 44%. I sure needed the sleep and rest that the cannabis provided.

Shooter1 profile image
Shooter1 in reply to wrando

Somewhat same story.. tests all showed contained and removable , but during surgery, doc knew we were in trouble. No defined margins and lymph nodes looked bad and were removed, 6 weeks later psa from 52 up to 62. Wrong way move just like yours....started lupron and 4 week later down to 6.5. Started Taxotere. after 3rd dose PSA down to 0.264. Now finished #5 and still getting about 25% drop every 3 weeks. Now 0.197. Normally 6 treatments and a break....doc has agreed with me to continue past 6 to 8 or 10 if I can stand the side affects and still showing reductions in markers....Agree, hit it hard from all directions possible as soon as possible....No cannabis oil for me while working as a railroad engineer.....keep up the fight and stay with us here....

Doug

Dan59 profile image
Dan59

It is good that He had such a fast drop in psa to what they call undetectable, this is a good prognostic factor. I wish you the best.

Dan

KenDuchek profile image
KenDuchek in reply to Dan59

Thank you

JamesAtlanta profile image
JamesAtlanta

Welcome to the group. Sounds like you’ve had a great response. In answer to your question, many have a dramatic drop as you have. As Dan says, it is a good sign for long term outlook, too. Mine was 227 at diagnosis, dropped to 9 the first month, and then undetectable in 4-months.

Feel free to ask other any questions you may have. Someone here will either have the answer or has dealt with a similar issue or concern. We are all here for each other!

James

KenDuchek profile image
KenDuchek in reply to JamesAtlanta

Thank you.Is this group only in the U.S.A. Any suggestions for hot flashes,i am taking primrose oil. Did you also do chemo?

JamesAtlanta profile image
JamesAtlanta in reply to KenDuchek

This is an international group. Let us know where you live, your medical history and any questions and friends will respond.

Best,

James

auroracham profile image
auroracham in reply to KenDuchek

For hot flashes, my doctor prescribed gabapentin.

Tjc1 profile image
Tjc1 in reply to KenDuchek

For hot flahes i have megestrol also known as Magace 20mg. Knocks them right down to nothing

WSOPeddie profile image
WSOPeddie in reply to Tjc1

I've heard some not-nice things about Megace -- that it can promote the cancer. I'm not a doctor.

ncbi.nlm.nih.gov/pubmed/102...

Tjc1 profile image
Tjc1 in reply to WSOPeddie

I never even thought about that. Hmmmm but it sure takes care of those pesky hot flashes!

Break60 profile image
Break60 in reply to KenDuchek

Ask ur doc to prescribe estradiol patches changed twice weekly to stop hot flashes. Place them below ur navel

KenDuchek profile image
KenDuchek in reply to Break60

Thank You.

chasd profile image
chasd in reply to JamesAtlanta

You're right James, there's nothing like real experience as an education media.

Robertleeb profile image
Robertleeb

I am so glad to hear a positive outcome with cannabis oil along with the hormone shot,I have been taking cannabis oil as one of my protocols, I have read negative remarks about it but I have done so much research to convince myself to make it one of my protocols along with my doctor's advice doing Hormone therapy, and radiation, it is my belief that we have to attack the cancer in more ways then one. I don't know how my situation is at this time, I am three quarters in to my radiation treatments and doing Lupron and casodex,along with cannabis oil, and CBDoil .one to one. I actually wrote a message to Dennis Hill about me doing cannabis oil and hormone therapy . I wanted to know if there was any kind of negative outcome by doing both and to my surprise he wrote back and said that doing the cannabis oil will make my immune system stronger and work better with hormone and radiation therapy. I read about him and his amazing story about how he stopped his prostate cancer by doing the cannabis oil only , I wouldn't do that , I will always believe we have to hit it hard, by using all the protocols we can that cancer does not like. even changing our diet and lifestyle can be a plus.

I will get a ct scan after the radiation treatments and then I will know for sure if it all worked, and I wouldn't say that the cannabis oil did it but hitting it hard in all directions what worked.

Please Ken let's stay in touch because the both us using cannabis oil and other protocols we can learn more about the oil and how it works with other protocols.

God Bless

Robert

KenDuchek profile image
KenDuchek in reply to Robertleeb

Hi Robert,Ken here.It is nice to talk to others in the same situation.I live in Saskatchewan Canada.That was sure nice that Dennis answered you.Did you have a prostatectomy?

Robertleeb profile image
Robertleeb in reply to KenDuchek

Hello Ken, No I didn't have the surgery, I was going to and I started to have panic attacks about it so I opt for the external radiation to my pelvic area, I am high risk at 4+4 gleason but I had only one core of my prostate positive , my PSA is less then 1 at the moment. bone and ct scan showed no movement from my prostate 2 months before the Lupron shot & Casodex. then waited 2 more months for the radiation treatments. now at 3/4 ways through that , the whole time from the time I had my biopsy and was confirmed to have prostate cancer at a early stage I started to consume cannabis oil because it seemed to me the doctors don't move as fast as I would like them to maybe I'm wrong but I thought my only thing that I can do personally to help me in my journey of fighting this disease. with all the evidence coming out about cannabis in all forms made me realize there is something I can do on my own while dealing the doctors and the slow process they follow , like I mentioned I wouldn't do the cannabis alone like Dennis Hill did. its like the doctors are giving me three different protocols to follow at this moment, so that is my advice to myself and any body, is to hit it hard with as many protocols as you can. I did recently added CBD one to one too.

Thank you can for your reply Ken

God Bless

Robert

in reply to Robertleeb

Dennis is still doing well, he responded to me as well! Maybe you don't know but he had sort of 6 months hormone shots. How are you doing? Greetings,

Hazard profile image
Hazard

Hi Ken, glad to hear that you had an excellent response to ADT. Keep on fighting.

KenDuchek profile image
KenDuchek in reply to Hazard

thank you

Roland632017 profile image
Roland632017

Hi KenDuchek

I am a high grade Advanced PCa survivor since 27.11.17. Currently I still have a stent on my right ureter. I am being staged just last week after finalising all my PSMA CT and Nuv Med Bone scans. I am on Stage 4 T4 N2-3 M2-3.

Do I look depressed. It does make be ponder. But what the doctor say aggressive and systematic cancer provides me a big window of opportunity to work on my cancer treatment in a systematic way. Look up my post. I am on 10 days of my treatment and I am feeling great. Good quality in live and able to perform sex. I will be in touch

auroracham profile image
auroracham

Hi. I am also new here. My cancer was identified July 1 this year. My PSA was 104.77 on July 3 and was 2.65 and dropping a few weeks ago. Money has spread to my spine, pelvis, and ribs. Just had a second scan and all was holding. So seems good for both of us for now.

auroracham profile image
auroracham

By the way, my doctor at MD Anderson in Houston told me that cannabis interacts with Zitiga. Not sure if you are on it. I am.

Tjc1 profile image
Tjc1

Yes with Androgen Deprivation Therapy it will bring your psa down very fast. Did they not do a ct and bone scan before surgery? I was diagnosed with PCa with psa at 44 and also with gleason 4+ 3. The first thing they did after the biopsy was a ct and bone scan before proceeding with any treatment.

Seems like the PCa might have escaped the prostate which makes surgery not an option. Such as me.

I would ask a lot of questions

Thomas

Break60 profile image
Break60 in reply to Tjc1

New studies have shown that surgery to debulk the main tumor helps reduce the severity and timing of metastasis since the main tumor continues to put out PCa into our system.

I had mine out and was found to be very high risk ( see my profile) . After 4 1/2 years I’ve had very few mets , which I’ve treated , and I am I’m doing well.

KenDuchek profile image
KenDuchek in reply to Tjc1

In late 2016 my psa was 42.Inspring of 2017 biopsey showed cancer and psa of 62. dr. removed my prostste .In july my psa was 72,then they sent me for a ct scan and a bone scan. Im rated at stage 4,metastasis to bones,liver and lungs.

KenDuchek profile image
KenDuchek in reply to Tjc1

Thank you.

chasd profile image
chasd

Don't know about the rate of remission but I will take a look at cannabis. Thanks.

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