I am new here. I have had prostate cancer for 8 years...Had surgery(can't think of name for it but it's like castration About 6 years ago) tried casadex and Lupron but I was allergic to both. I am a very active 92 years old. I now have 2 elevated lymph nodes and my oncologist did a bone marrow test and result..bone cancer and bone marrow cancer. He as well as another oncologist said take Xtiga and prednisone..at the time I hadn't been eating..no appetite for a long time.. Those meds put me back to eating ..had to actually learn to swallow again and walk again. exercise also...
I feel good and like my old me now for a few months...taking blood tests very often which seem good. I really do not know how long this will help.
Would like your opinions and thoughts very much. My wife Shyrlene istyping all of this and naturally she is worried about time on Xtiga and prednisone.
Sidnw
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sidnw
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Odds are you will not make it past 100...so figure you have 8 good years left...a 2 lb porterhouse + fries and a milkshake once a day till you get your strength back
In Study 2, men who had not already had chemo had a median Overall Survival of almost 3 years, and, notably, at least 1/3 of the study participants were still alive and kicking 5 years later.
Keep working closely with your doctors, and report all your symptoms. There are lots of other options beyond Zytiga, too. Whatever you've already been doing to live as long as you have, Keep it Up! You are an Inspiration!
Thank you for the info. I am a Young 92 year old guy.!! I would be so happy for a 3 year survival.....
I am now waiting for my Oncologist to decide whether to take me off Zytega or add somethg. else to it. Zytega has kept me alive so far and I was actually almost dead and having a lot of blood transfusions. With good food that I had no appetite for before at all for quite long and a good helper who had me doing some exercise constantly I came back.
We are grateful to you for having joined us at this age as a PCa survivor. Very inspirational and you deserve many more years of fulfillment to your hart's content. Apparently you only need a good oncologist to add those meaningful years. There are several options that he may use strategically to extend your life. On your part look after your energy and activity levels. Yours is already a success story. Congratulations!
Sidnw....Thanks for your replies...Positive thinking and determination and support from my family plus excellent physical and occupational therapy brought me to this point making me well again.
Thank you Nalakrats. My Oncologist and I discussed Xofigo..He is interested in adding another with the Zytiga and Prednisone I am taking. My PSA is beginning to rise slowly , but up to now Zytiga has really so far, saved my life. I am trying to eat well with Ensure or Boost, also. Did not know Cancer hates oxygen .....and I hope I do make it at least a few years more!
Hi Sidnw, I sure you will do well on the Xtiga, that did not work for my husband but when it works for you it's a game changer. Good luck and keep the faith! keep us posted.
I'm a worrier too tell your wife. Sending her a hug.
Just curious on your current status as my dad is 90 and has prostate cancer that spread to bone. He was starting zytiga and prednisone but ended up in hospital then rehab then hospital as he needs blood transfusions. He had done radiation for bone mets 15 treatments and finished 4/23/17. They now suspect he has cancer in bone marrow. He has lost 40 pounds, not eating, problems now swallowing, and got muscle atrophy in past 30 days, and is not in good shape. Since he is 90 yrs old hospital is forcing hospice. I feel that we never got chance to see if zytiga would work. He only took the medicine a few days. Not ready to call it a day...Then I read your story...Please let me know how things are..
I am not that young....Imy prostate cancer spread to bone and bone marrow...had zytiga 7 mths and prednisone ..helped me and stopped working..Provenge next...as far as I am concerned it made me worse....Xtandi next and prednisone,,2 pills..every other day. Now ankles swelling..Dr. said it's the cancer....just took a genetic test..wtg. for results....I lost weight being that I do not eat that much. am trying tho.
Be hopeful as my wife and daughter are trying to be.
What's wrong with taking both Boost and Whey protein? My wife makes a mik shake daily since I have no appetite forlunch...she puts different fruits in..blueberries, strawberries, pineapple and whatever other fruit , ice cream and a large scoop of whey. I believe it is helping me feel not as tired as usual and am taking Xtandi and prednisone.
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Congratulations on your longevity and active-ness 
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