Just found this site and was excited there is a forum to share and get advice. Everyone seems so very supportive - happy to join such a caring group. I guess we are all in this together.
My short story: I was diagnosed with advanced metastatic prostate cancer almost 2-years ago (May 2015). Was playing golf and had a lot of pain on a swing - thought it was a muscle pull. Kept getting worse and finally figured out it was PC.
PSA was 227. Found that cancer had spread to one spot in my spine and a couple of spots on my rib cage. Gleason score of 9.
Immediately began Lupron. Had multiple rounds of radiation on my spine to alleviate pain (spinal compression). Then went thru 6 rounds of chemo (docetaxal).
Responded well - PSA dropped to 9 in the first month and became undetectable in about 3 months. Over the last year (2016), PSA began to climb gradually. It went from 0.1 in January of 2016 to 0.7 in January of 2017. Since the summer of 2016 it has basically been climbing about 0.1 points per month.
I know my PSA is still in the 'normal' range, but it is slowly creeping up. And I'm worried this is a sign I am slowly becoming androgen resistant.
I have my next oncologist appointment in a couple of weeks and want to get prepared. He is apparently doing everything according to the book (validated by everything I have read in Dr. Walsh's book) and is very encouraging because my PSA is so low. But I do want to make sure I'm doing everything possible. I'm still in good health - age 55 and still able to work full time. But the wear and tear of Lupron is starting to sap my energy level and strength. And I have some chronic back pain from the damage from the cancer and the radiation. So I'm currently considering leaving work to go on disability. Want to focus more on myself, my beautiful wife of 30-years and our kids
Anyway, if anyone has any insight into a slowly but relentlessly rising PSA, I'd appreciate hearing about it. I can't get a clear answer as to when I'm no longer in remission or when augmenting my treatment with new therapies should be considered.
My best to all of you, too! Happy to share insight into what to expect from chemo or radiation. I certainly consider myself experienced in those areas. As well as what being on Lupron for 2 years is like.