We arrived home from our visit to dr. Myers yesterday and we saw dr. Myers yesterday. He said that he feels LG's cancer is in the shoulder but he is not a hundred percent. He says that if it is....then the casodex is not working so he changed him to Xtandi. Wondering what we should expect from Xtandi. He will start him out on two pills and hopefully work him up to 4 which makes me wonder about the side effects if he can get to 4. He started him on a high dose of iron and vitamin C because his iron or something related to his iron is very low and he says it should help with the weakness and shortness of breath. He doesn't understand how the doctors did not see that. He also is giving him a blood test that will help him to see if there are cancer cells in his blood. None of this is verbatim. It's so hard to remember everything said but I'm sure it is similar. He's also giving him other blood test to try and keep track of the cancer since he has a non cancer-producing PSA. He said his last F-18 pet scan and the previous one have not changed at all and that is a great thing. The only thing changed was the shoulder the left humoral.
He says the iron and vitamin C may not make a difference until at least 4 or 5 weeks. We were very pleased with this visit. Very thankful to dr. Myers for going out of the box and not just watching what could possibly be the cancer growing and just waiting for scans to see if it is growing as our local oncologist is doing. Thankful to all of you and for any input. I have not been very active here as my life has become quite overwhelming. Off topic...... I am worried about a recent scan of mine showing 5 lesions in my lungs and two that have grown. One doctor just wants to watch them grow more and I go to my sarcoidosis doctor tomorrow to see what he thinks because everyone was not sure what the lesions are. My best to wishes and healing prayers for everyone. More off topic. ... everytime we go to dr. Myers we go to Safari Park in Virginia. It lightens the mood a lot. Here is a photo of oh so much fun. Most sincere, Jackie
Charles Eric Winter