Provenge Poster Child: 2008 Gleason 4+... - Advanced Prostate...

Advanced Prostate Cancer

22,015 members27,616 posts

Provenge Poster Child

Scoop65 profile image
8 Replies

2008 Gleason 4+3, 2008 RP, 2009 Radiation treatments, castrate resistant, ADT and Casodex, PSA 20 with metastasized lymph nodes, 2012 Provenge, present PSA 0.2 with metastasized lymph nodes, still doing Hormone Therapy

Written by
Scoop65 profile image
Scoop65
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Scoop65 profile image
Scoop65

I should note I was 61 when 1st diagnosed

Darryl profile image
DarrylPartner

Do you feel that Provenge worked for you?

Scoop65 profile image
Scoop65 in reply to Darryl

Yes, it definitely worked for me. Prior to the treatment, Doc said I had 3 years left. The company has since gone bankrupt and purchased by someone else.

Arcticfox44 profile image
Arcticfox44

Hello - Could you elaborate on your experience with Provenge? Where did you receive it? Was it covered by insurance? Was your PSA 20 when you started Provenge, and did it ever fall below the present level of 0.2? Have you had PET scans showing where the cancer is? Abdominal lymph nodes only?

Scoop65 profile image
Scoop65

Yes. PSA was 20 when I started. It was doubling every 3 months. The treatment was in Iowa City, IA. PSA was 0.12 and just went up slightly. Lymph nodes located in pre-sacral.

Medicare covered treatment @$90,000. I've not had a PET scan.

JoelT profile image
JoelT

Most insurance companies do cover Provenge, including Medicare in most areas. If they refuse to cover it you should speak with the Dendreon people who will reach out to the insurance company and attempt to negotiate payment. You can also reach out to them to find the locations near you where you can arrange to receive it. Their phone numbers are:

Phone: 877-336-3736

Fax: 877-556-3737

Yes, the original company went into bankruptcy, but they were bought out and still function under the name of Dendreon.

Joel

chascri profile image
chascri

Sounds like good results with Provenge. What was your PSA before you had your Provenge infusions in 2012. Any other metastasis besides lymph nodes before you started Provenge? Any other since?

Scoop65 profile image
Scoop65

PSA 20 prior to Provenge. No mets other than nodes. I've been on hormone therapy since 2008. I know it's helping but side effects are wearing me down

Not what you're looking for?

You may also like...

PSA slightly up after salvage radiation

I was diagnosed with PCA Gleason 8 in 01/2009 and had prostatectomy in 02/2009. PSA <.01 for 8...

Is another MRI needed?

my husband had an nuclear medicine bone scan and CT on 1/27/22 which did not show metastasis in...

T2c N1 M1a

Diagnosed early March 2019, but pretty far along. 103 g prostrate - adenocarcinoma in 10 of 15...

Newly Diagnosed Metastatic Prostate Cancer

62 years old diagnosed with Stage 4 metastasized to both hips, spine, and ribs. I have yet to find...

Zytiga and Type 2 Diabetes

I’m a 75 yo with Stage 4 PC. GLEASON 8, Metastasized to lymph gland but not bones. Treated with...