I don't know what to do when nobody will listen!!!

[pRoudmommy2014]

Ok, so my little had a TBI at birth (her heart rate started to drop so they did an emergency c-section, she wasn't breathing for 6m then had seizures). Along with that came multiple behavior issues, multiple diagnoses and still so much unknown, elopement problems, goodie/baddie, etc.. There is so much over the last few years. And nobody listens! I have no support. Zero!! I'm not looking for sympathy or anything like that buuuut I am looking for people to do their job. Not too much to ask, right? I could go on and on but I won't bore you with the s***show that is my life. If you have questions or advice or suggestions, please comment or reach out. Stay blessed!!

[robertju1]

One suggestion I have is to try reaching out to local support groups or organizations that focus on your child's specific diagnoses or needs. They may be able to offer resources, guidance, and a supportive community of people who are going through similar experiences. You could also consider seeking out a therapist or counselor who has experience working with children who have experienced a TBI, as they may be able to offer you and your child support and guidance.

Additionally, it's important to advocate for your child and make sure that their needs are being met. If you feel like you're not being listened to by medical professionals or educators, it may be helpful to seek out a second opinion or consult with a specialist in your child's diagnoses.

Remember that you are not alone, and that there are people and resources out there that can help support you and your child. Stay strong, and don't hesitate to reach out for help and support when you need it.

yourdoctors.online/ottawa-d...

[pRoudmommy2014 in reply to robertju1]

Thank you!

[Harnessinghope]

I agree with the first commenter. Support would be helpful. It sounds like you are tackling multiple roles, though. You will need to be sure that you try to prioritize yourself, even if for just five minutes. I have a little with ADHD and other issues too.

I also happen to be a professional, who works with children. When I hear what you have written, from other parents, there often is a communication divide that needs to be crossed. Sometimes the professional isn’t hearing the parent and sometimes the parent isn’t hearing the professional who is really trying to help. Sometimes it has been parents that have gotten stuck in a role and are not open to hearing something other than their understanding.

I hope things improve for you and your little!

[eva2022]

I’m so sorry. This sounds so hard! Our son has been a very difficult journey for us but we are lucky to be in an area with many resources. I can’t imagine trying to do it by ourselves! Your daughter is benefiting from you not giving up seeking help and support for both you and her ❤️

[Saguaro22]

What city, state, country are you in? That may help us from that area provide contacts, policy, or ideas for support.

[pRoudmommy2014 in reply to Saguaro22]

mesa, az

[pRoudmommy2014 in reply to Saguaro22]

chat?