Had my Ent appointment : Hi everyone... - Acoustic Neuroma ...

Acoustic Neuroma Support

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Had my Ent appointment

Las20 profile image
3 Replies

Hi everyone,

I thought I would give a quick update as so many of you kindly responded to my previous post about my sudden hearing loss.

I just got home from my Ent follow up after my hearing test and mri. He told me there is no tumour which is great news. Of course I’m thankful for this outcome but he has advised my high frequency hearing loss is 90db (I think that’s what he said) and unlikely to return. So I’m still quite upset that there isn’t anything that can be done. No point in having a hearing aid as this type of loss is worse in noisy environments and hearing aids don’t help much then. I need to see him in six months for another hearing test to see if the hearing gets any worse. He also said something about some kind of tinnitus support? He says he thinks the night I went to bed and woke with the hearing loss was most likely a virus. I’m not likely to suffer the same outcome in my other ear with the same virus as I’ve now got antibodies but can’t say I wouldn’t get a different one that attacks the other ear.

So thanks for the support offered I really did appreciate it as I was quite concerned. Wishing you all the very best, take care. Lisa Xx

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Las20 profile image
Las20
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3 Replies
Karbob profile image
Karbob

Hi Lisa glad it is an AN. But sorry to hear about your hearing. Good luck

Daisymeadow profile image
Daisymeadow

You must be relieved. I’m sorry to hear you had sudden hearing loss. That must have been such a shock, I have a fiend who lost hearing on one ear from a virus.

There are a couple of great fb support groups

Hearing loss:the emotional side &

Single-sided deafness support group

flappers profile image
flappers

Hi Lisa, I’m so so glad for you that you don’t have an AN as well as having to manage single sided hearing loss and tinnitus, as that’s enough to deal with!! I hope you can get some help with that, I find a hearing aid that side with a tinnitus masker setting helps a bit, as does hypnotherapy and generally finding ways to adapt ( in a noisy pub, i sit with bad ear to the wall, etc) I started lip reading class too, to be honest, it’s really funny and I just do it to feel like I’m taking an active part in finding tools to help. Join the tinnitus association too? I know it feels like you won’t, but I promise you, even if it continues you’ll adapt. Glad you don’t have to be in our brain squatter club too. Best of luck x

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