Wondering if I have AN🤔: Hello, I... - Acoustic Neuroma ...

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Wondering if I have AN🤔

ys52 profile image
ys52
7 Replies

Hello, I was looking up my symptoms on the NHS website and it led me to this group, after reading some posts I'm beginning to think I have AN ....

I've been feeling incredibly fatigued for about 2 months now and so have been giving myself a bit of a health makeover to try and find out why. ( I do have Hashimotos but levels are ok)

My ears were also feeling really blocked up so I went and had them suctioned.

It didn't really make a difference, in fact it's made it worse. One ear still feels really bunged up ( clinic says it's clear) and I'm feeling really off balance, with headache and nausea. I also get a deep pain in both ears.

Feels better when laying down, so vertigo symptoms really.

I will try and get a GP appointment tomorrow but does anyone have any advice that I can take with me please?

Thank you

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ys52 profile image
ys52
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7 Replies
flappers profile image
flappers

It’s horrible to have these problems but it is so very highly unlikely you have an acoustic neuroma. Any feeling of ear block would only be in one side, more likely with one sided deafness and screaming tinnitus. Any ear infections can cause the imbalance you describe. I think Google is not your friend here. It is best to list all the things that you directly are experiencing, not what you are reading, and give that to the GP, ask for an ENT referral as they are no longer blocked… good luck!

Kristyll profile image
Kristyll

I had a. Locked feeling in one ear only and dizziness ask your GP to give you a referral preferably to your nearest excellent ENT department. Good luck

GGourmet profile image
GGourmet

Although I didn’t have Hashimoto your symptoms are pretty much the same as mine were. I got the congestion sorted with mometasone furoate but AN also causes congestion like feeling in the impacted ear, it did for me. Please get yourself checked.

Pinkrose1 profile image
Pinkrose1

Try not to imagine the worst as it is a very rare tumour and your symptoms could be due to other problems. However if you feel concerned then push for an MRI as for some years i had symptoms and went to a number of doctors who thought it was TMJ including my dentist and it wasn't until i went deaf and had an MRI that it was found to be a large tumour. So good to get it checked but don't overly worry of what it could be as it is rare

Hi. I wondered/worried about an AN with the symptoms I had - I paid £300 for a private MRI - it wasn`t an AN - eventually I saw an ENT consultant via the NHS - he suggested Menieres disease. The MRI is the best way to ease wondering/worrying - it can take a long time to wait for an MRI on the NHS and depending where you live you can access a private, paid-for, MRI quickly. The MRI images I received were fascinating (they come to you as the patient and also go to your GP) - imagine being able to see inside your own head! [oh, and you`re not taking up an NHS appointment by paying privately for your MRI - there are lots of appointments available, but the NHS cannot afford to pay £300 for each of us that would like an MRI for peace of mind]. I hope you find some clarity/reassurance soon - I tried to rationalise and tell myself it was most unlikely to be an AN causing my issues, but my symptoms were indicative of an AN so it was really helpful for me to have the MRI (and also feel like I had not wasted NHS money when it turned out I was normal!)

IloveGSDs profile image
IloveGSDs

Thank you everyone, I had a face to face appointment with the nurse at my surgery and she thinks I have Labyrinthitis.....she has given me tablets for the vertigo and a nose inhaler to try and clear any congestion. I am going to have an ear test tomorrow as I definitely have hearing loss in one ear!

whitefishbay profile image
whitefishbay

Really you should go to A&E and have it checked by the ENT team. They treat sudden deafness (muffled hearing) like a stroke and you need to go early for steroids to work.

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