Hi - I have been registered here now for a while since diagnosis in 2013 though have not posted anything to date. However I have learnt so much and benefited from posts here so thank you all for your contributions.
I was diagnosed with what I now know and have been told was a very small acoustic neuroma measuring 4x3mm in 2013 but has slowly but steadily grown to over 11mm as per my last annual consultation in September 2018. I had undergone intensive VRT -vestibular rehabilitation therapy to restore my balance over a period of almost 2 years. I had to leave my full time job eventually as the stress meant I continued to have really bad bouts of vertigo, imbalance and what I call a heavy head. So until about a month ago I have managed symptoms really well with a part time job. In the last year I have noticed that my hearing is going gradually and consultant has agreed to refer me to ENT or somewhere (can’t remember) for hearing therapy or something of the sort. However in the last 3 weeks I have deteriorated significantly to the point where I can’t leave the house with all symptoms returning to when I was initially diagnosed. My balance has deteriorated, Bouts of vertigo, and a constant head ache. I have had to be signed off work which is frustrating. I went to my GP to ask for medication which I had not need for the last 2.5 years or so and have now started taking again. Buccastem knocks me out so feeling tired a lot. GP reckons it is possibly because of a cold I was recovering from. I have also been referred to ENT for VRT. This is frustrating as it has brought back feelings of anxiety, loneliness and helplessness I felt and experienced in the first 2/3 years of diagnosis. Has anyone been in such a situation which feels like having a relapse as a result of another medical condition.