Cancelled operation due to lockdown

[Teashop]

Did anybody out there have there AN operation cancelled as lock down started.Has anybody had new dates yet.Mine was cancelled for 19 march..

[Tabbycat]

Good morning, Teashop

Here in Leeds lots of planned operations were postponed as we went into lockdown. However, things are slowly returning. I had my annual MRI cancelled in April, but had a letter to go to St James' on 10th June. Only one patient and one radiologist allowed in the department at a time. Everything had to be cleaned down inbetween patients. I usually have a cannula and contrast dye, but not this time. The radiologist told me it was going to take them ages to catch up with the backlog.

We have a specialist nurse (who is part of the skull base team) who is great at answering questions and telling you what is happening in the department. You just have to leave her a message and she'll get back to you. If you have someone like that in Liverpool, try giving them a call or do you have the number of your consultant's secretary?

When I was first diagnosed one of the most difficult things for me was the waiting (still is, to be honest). There seemed to be such long gaps between events and then I was put on 'wait and watch' for 4 years! Sometimes it is very difficult to put everything to the back of your mind and stay positive.

I hope you hear very soon about a date for your surgery and that it all goes as well as it can. I shall be thinking of you.

Stay safe

Tabby

[Teashop in reply to Tabbycat]

Thank you .l have rung the surgeon secretary but she replied she has no idea when they will restart .not very helpful. But what will be will be .😁

[Teashop]

Thanks

[Shannon_TBTC Partner]

Hi Teashop, I am sorry to hear your operation was cancelled and I hope you hear soon with a new date for your AN operation. The NHS announced that they were postponing all non-urgent elective operations in England from 15 April for three months and we appreciate that this raised questions for some of our community.

We have a dedicated page on our website about how coronavirus is affecting treatment.

thebraintumourcharity.org/m...

We also reccomened that you contact your medical team regarding any updates with your surgery and talk to them about the impact this may have had!

Let us know if you have any further questions.

Best wishes.

[Teashop in reply to Shannon_TBTC]

Thank you for your reply .l have rung my surgeon secretary her reply was she had no idea when they will be starting again.l must say l feel abandoned as the hospital have not been InTouch even for a welfare call.l only we t to hospital at the end of Jan 2020 and the operation was due on 19 march so not much time to get my head in right place and then to be cancelled the week before l found it quite a lot cope with . fortunately lockdown has given my space and time l have been do Tia chi and qi gong and lots of walking so am fitter now and have list half a stone .so not all bad .l am a positive and feel what will be will be.

[Linzipops]

Hi mine was cancelled from 4th May.....have been in touch with skull base nurse as my symptoms are worsening and Im also concerned as this will be my second surgery plus I’ve had GK so have been told surgery will be more aggressive so more chance of side effects. Hopefully they will get back to me next week with some news. Where are you due to go for surgery? I’m scheduled for Southmead, Bristol and we have been ver6 lucky in the South West not to have been affected by corona as badly as some places so the hospitals started doing elective surgeries again a few weeks ago. Linzi

[Hzw1994]

My surgery was cancelled at the start of lockdown but then I developed more severe symptoms so they found me a spot and got me in 2 weeks later. They said they are currently only doing surgery for cancerous patients and patients with severe symptoms. Hope this helps

[Tabbycat]

Hello Teashop

Have you had a date for your surgery yet?

Please let us know how things are with you.

Thinking of you,

Tabby

[Teashop in reply to Tabbycat]

Thank you for your message.no still no date.my left eye now feels strange and left side of face and mouth quite numb.am to opticians tommorw to see if eye is to do with neuroma or not then will get in touch with GP to see if l can have scan to see if it has grown anymore it was about 2.9 cm last time and on brain stem.l will post outcome thank you again .

[SJa2020]

All the v best.

Yes my eyes feel odd too! Once felt as if someone was carefully pushing it on one side!! Things your body goes thru’!!

TC & all the best.

[Tabbycat]

Both of you - Teashop and SJa2020 - are in thoughts.

Stay safe, Tabby