Acoustic Neuroma Support
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Headaches and nausea - what do you do?

Hi

How do you cope with the headaches and nausea?

I had MRI early December and 2.4mm AN was found by local ENT. I am waiting to hear about a referral to a Manchester specialist.

In the meantime trying to find how to best deal with the nauseating, increasingly painful headaches. I am using paracetamol, ibuprofen and next week I will be trying acupuncture. 😏

What do you do?

Also have a numb patch above my ear and neck pain (all on AN side) together with the hearing loss and tinnitus - your top tips welcome!

Take care, hope you all have a good day.

10 Replies
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Meant 2.4cm... brain fog...

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I found that keeping very warm and well hydrated helped - I even bought a neoprene headband for winter outdoors wear and that helped a lot in keeping the affected areas warm. Hope this helps you too.

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Thank you, really appreciated. Haven't actually reflected over why I started using my winter hats a bit more - and it might be just because it does help. Will use even more.. 😊. Thank you!

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Oh it all sounds so familiar! Bypass' comments very helpful re. warmth and hydration. My AN (3 cms) ear SO appreciated being kept covered! I wish had started meditation earlier on in my "journey" as it's helped with absolutely everything. If you can get into that, it may be a very good thing to do. I use "Headspace" and find it the best I've tried. I'm still working on the tinnitus, and am now also trying a neurochirpractor. Will report back in a few weeks.

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Thank you 😊. Will be interesting to hear how you get on with neurochiropractor. Will check out 'Headspace', thank you for advice 💐

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esbjorn:

If your headaches are in the back of your head (and it is warm to the touch) the problem may be with your balance; it was for me for months. If not, forget this post. If so, your cerebellum may be trying to make sense of the misinformation it is receiving from your AN damaged ear, getting nowhere. If this is the case, you can relieve the pain by re-setting your cerebellum (yes, you can re-set it). My 15mm AN (VS) destroyed my left ear hearing and balance.Once I created an exercise to reset my cerebellum it took many days, doing the exercises 2-3 times a day before the pain was gone and I regained much of my balance. It takes about 6 months for the cerebellum to learn to maintain a healthier re-set state, only requiring doing the exercises 1-2 times a month. I started doing the exercises in 2002, and for at least the last decade I have only been doing them once every few months. Basically, once you get past the pain stage, just do the exercises when your balance goes out. Refer to the following link and click on its attached video at the end:

thebioengineeringco.com/ind...

I hope that this helps,

Dean

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Thank you, just watched your video. The exercises certainly makes sense and I will try them out. Thank you 😊

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esbjorn:

Refer to the PDF attachment at the bottom of the to give you a better understanding of how to "fully" do the exercises.

Dean

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Thanks

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Hi, thank you all so much for your kind replies and advice. Very helpful - and most appreciated. It also makes the 'journey' feel less scary and more 'normal'.

Hope you all have a good week. Kind regards

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