PCOS query??

[mumziep]

Hi all I'm 46, I've had PCOS for over 28 yrs...I've also been diagnosed with Fowlers Syndrome which urologist thinks is highly related to PCOS...is there any other ladies here that have both these? 🙂

[spenny5]

Yes I have both too.

[mumziep in reply to spenny5]

Thanks for your reply...so do you self catheterize, are able to empty yr bladder inpart or have the surgical intervention?

[spenny5 in reply to mumziep]

I was catheterised then self catheterisation. I now have a sacral nerve stimulator which I have had for 5 years. Although currently waiting operation date to get wires and battery replaced. Do you self catheterise?

[mumziep in reply to spenny5]

Yes until recently, I have other health problems so finding the S.C tricky...I'm worried about the medical intervention & infection rate...how have you found it?

[spenny5 in reply to mumziep]

I struggle too with S.C with pain on insertion and removal. I was on long term low dose antibiotics which does help keep things at bay.

[mumziep in reply to spenny5]

I'm so nervous about having to go back to the doctor because I know what's going to happen next & I'm scared if I'm honest.

[spenny5 in reply to mumziep]

Have the spoken to you about options the urologist? Or is it just self catheterisation?

[mumziep in reply to spenny5]

No haven't spoken to urologist yet...

[spenny5 in reply to mumziep]

I would ask to be referred to urologist for help. They are good and can do tests to check how the bladder is working and best course of action

[mumziep in reply to spenny5]

Yh I think I need to go bk as lat time they diagnosed with this Fowlers Syndrome & recommended SC but am just struggling to empty & the pain is awful not to mention the swelling so will have to...thanks for answering..I appreciate it.

[spenny5 in reply to mumziep]

No worries at all. If you need anything feel free to contact. I would start by asking to see a urologist.