PCOS query??: Hi all I'm 46, I've had PCOS... - PCOS UK (Verity)

PCOS UK (Verity)

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PCOS query??

mumziep
mumziep

Hi all I'm 46, I've had PCOS for over 28 yrs...I've also been diagnosed with Fowlers Syndrome which urologist thinks is highly related to PCOS...is there any other ladies here that have both these? 🙂

11 Replies

Yes I have both too.

mumziep
mumziep in reply to spenny5

Thanks for your reply...so do you self catheterize, are able to empty yr bladder inpart or have the surgical intervention?

spenny5
spenny5 in reply to mumziep

I was catheterised then self catheterisation. I now have a sacral nerve stimulator which I have had for 5 years. Although currently waiting operation date to get wires and battery replaced. Do you self catheterise?

mumziep
mumziep in reply to spenny5

Yes until recently, I have other health problems so finding the S.C tricky...I'm worried about the medical intervention & infection rate...how have you found it?

spenny5
spenny5 in reply to mumziep

I struggle too with S.C with pain on insertion and removal. I was on long term low dose antibiotics which does help keep things at bay.

mumziep
mumziep in reply to spenny5

I'm so nervous about having to go back to the doctor because I know what's going to happen next & I'm scared if I'm honest.

spenny5
spenny5 in reply to mumziep

Have the spoken to you about options the urologist? Or is it just self catheterisation?

mumziep
mumziep in reply to spenny5

No haven't spoken to urologist yet...

spenny5
spenny5 in reply to mumziep

I would ask to be referred to urologist for help. They are good and can do tests to check how the bladder is working and best course of action

mumziep
mumziep in reply to spenny5

Yh I think I need to go bk as lat time they diagnosed with this Fowlers Syndrome & recommended SC but am just struggling to empty & the pain is awful not to mention the swelling so will have to...thanks for answering..I appreciate it.

spenny5
spenny5 in reply to mumziep

No worries at all. If you need anything feel free to contact. I would start by asking to see a urologist.

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