I'm here on behalf of my 20 year old daughter. Diagnosed recently bit first cysts found 2years ago. She has started losing hair and is desperately worried . She has been offered Androcur and Dinette but these both cause deaths every year so is reluctant. She did take Androcur for a month but had side effects . Already started a low GI diet and sugar reducing . Please Help.
Hair loss: I'm here on behalf of my 20 year... - PCOS UK (Verity)
I have suffered from hair loss. It was most noticeable from the frontal lobe area and when I tied my hair up for the gym you could really see it.
Since my diagnosis I have changed to a low GI diet and cut out sugar (obviously cutting out all sugar is hard to do but I do the best I can and stick with it) and now my hair is growing back. It's a silly fluffy length at the moment and sticks up but it's there!
The change in diet has really helped me and in more than just my hair growing back. I feel so much better.
I do find it hard, especially at work explaining to people why I have suddenly stopped eating the biscuits and treats that I have loved for years but I just say that I have developed an insulin resistance and so I can't have it and people now know not to offer it to me anymore. I found telling people I can't have it and a fairly vague explanation of being insulin resistant will satisfy their curiosity. Saying I can't have it rather than saying I don't want it means that people don't try and talk me into having it which is a huge help because deep down I would love to be able to eat it and I don't need the pressure of them saying "go on it's Christmas!".
Hair will take a while to grow back so a new shorter hair cut might could also help it look thicker.
I hope the change in diet helps your daughter
I hope things improve for your daughter (I bet having a supportive mum is a big help).
I changed my diet in September and I'd say my re-growth is about 2 inches long. I wouldn't say it's 100% grown back but I'm happy with the improvement.
I'm sorry I can't give you any insight on the medication but hopefully another person on this forum can.
All the best x
I was on Dinette for many years and tried many others with side effects and the only one that really worked for me is Gedarel.
I also suffered from hair loss and it really effected my confidence. At the time I wasn’t aware of diets that helped so I did a hair loss treatment (Minoxidil) and it really worked for me. The only problem is that if you stop, you might lose the hair again. I can’t really say as I never took the risk in stoping so now it’s been over 5 years of treatment.
I am trying to get pregnant and when it works I will need to stop, although I’ll be so over the moon that I won’t mind if that will mean losing my hair again
Good luck to your daughter and having a supportive mum really helps!