ANCA Vasculitis - Are you interested in taking part in the HAVEN Trial?

[Suzi70]

vasculitis.org.uk/news/are-...

[Gurberly]

I'm kinda interested,

The website trialsjournal.biomedcentral...

Says:

Participants

Patients with ANCA-associated vasculitis (AAV) attending NHS vasculitis clinics will be approached by their direct care team to take part in the trial.....

So should I email HAVEN direct or mention it next time I have a hospital consultation or does it depend if my hospital is a recruiting hospital?

[Suzi70 Administrator Vasculitis UK in reply to Gurberly]

No harm in emailing and asking first

Thank you for the link 😊

[Kenneth]

I have had GPA since 1994. I would be very interested in the Haven trial

[Red-head44]

yes I would.

[LindaMRich]

Thank you for this - Yes, I would be interested in taking part in the Haven trial.

[P123sue]

interestingly I have gpa vasculitis and my sister has lupus

[Ilikewatching3333]

hi, i would be interested too. ANCA and GPA-AAV. diagnosised 2021. next rheumatologist app with consultant is on 1st May, so good timing. have problems with sight at the moment, so find it easier to call. welcome to send me a number to call and i’ll forward mine, for further discussion . especially if need to discuss on the 1st of may, as then next appointment and trying to get hold of consultant won’t be until oct/nov review. regards Rose