We all read these posts at different times, days.
I usually like to try and see that everyone gets a response - even if it's only to reassure, or acknowledge to, someone that they've been heard as I hate to see "no comments" after a post.
There are so many helpful people on here I like to think I can give something back.
I'm very low at the moment and I'm having to step back for a bit.
regards,
sandra.
I am sincere in my responses - it's not "ooh what a goody goody I am, everyone look!"
sandra.
Hi Sandra
So sorry you're feeling so low at the moment. Please be assured that it will pass. I can't imagine that anyone is thinking of you as a 'goody goody' in the way you express it. I think folk appreciate knowing that someone cares and that we are not alone with our thoughts and feelings.
Personally I rarely post as I always think someone more knowledgable will respond better or be more helpful. People like you. So keep posting please :).
Hope you feel better soon
my thoughts are with you
Nell
Hi Sandra sorry yoiu are not feeling too good at the monent. Hope things get better soon.
Hi Sandra, we all feel low at some point and I personally think that nobody understands how ever when reason sets in I realize that most people with this illness go over to the Drk Side now ans again, Just come on here and shout for help.!!!!!! We are here for you good times low times.
Patsy
Always look for your comments, and so must lots of other people, so they are always appreciated.
Some time ago Libby Purves wrote an article saying that the world needs more 'wise old owls' to sit back and look at things from a bit more distance than most people manage.
So if you have a rest for a bit, make sure you come back and give us all more wise comments.
Hope you are feeling stronger soon
Sandra, in my present early days of wg,yourself and other forumites,have been a tremendous boost to me.As for "goody-goody" thinking more "good-good" Hope you feel better soon,you are appreciated. Thank you John
We think your posts, questions and answers are so valuable to everyone Sandra... as you say no post or question should be left too long unanswered and as you rightly say showing encouragement and empathy helps a lot or pointing someone in the right direction often helps a lot too.. yesterday we had 4 telephone calls and received at least 4 emails each asking for help.. benefit advice, health insurance advice, newly diagnosed and parents worried about their children who have Vasculitis....It isn't easy, but giving support to each other is so very important....So we want to say thank you for helping people here in the HU community and on fb too. We both hope you feel better soon... just take care of yourself too... x
Hello Sandra,
I'm with you sister! 
But...... I've had some quite bad news recently and just choose NOT to let it drag me down. Without sounding like a "goody two shoes" either, I have had (like most of us) upsetting times but instead of opting for the "low road" , this time I took the "high road"! I can't change what has happened to me but I CAN change how I deal with it. I just don't see the point of being down and dragging everyone down with me.
Yes, feeling down is understandable, especially with all the issues we have to deal with, but please never think you're on your own as we're all here for you.
Actually I LOVE your posts Sandra, your poems & odes are funny and insightful and indicate you're a deep thinker. Chin up girl!
Hi Sandra,
I am sorry to hear that you are feeling down, I think most of us on this forum know how you feel and hope that you soon feel better. As to replying to posts, I am like Nell in that Ionly reply if I think I can be helpful.
Jim
Hi Sandra, though I have CSS I find it difficult to imagine what other vasculitis sufferers are going through because the symptoms affect most of us in different ways. I try to make light of my problem but every so often it reminds me by giving me another ailment to contend with, e.g. my hearing went to rats hence I opted for grommets. Also I think, to a large degree, the feeling sometimes that not getting all the help possible, and quickly, becomes a negative which can drag you down without realising it.. Because I was very active before CSS I generally get frustrated taking longer to do DIY jobs or having to ask for assistance. My family and friends are always very supportive which is a real plus. Take care and know you are not alone. By the way, the grommets have improved my hearing and I'm hoping that it is not just temporary. I sympathise with anyone on steroids too because my family found it difficult to cope with my mood swings. I started writing about my CSS experience but stopped a while back. It's something I will continue with in time but seem to be too busy now. Sorry folks, I seem to be rambling on. Best wishes to all.
I saw a quote yesterday 'Life is not sheltering from the storm but learning how to swim in it'
Hope you feel better soon. x
Hi Sandra, so sorry you're feeling low, I always look forward to reading your posts and will miss them, hope you feel better soon.
Take care x
Hi Sandra, I have always thought of you as the person who thinks their glass is half full and never half empty. I think you should start worrying for me, I noticed the other day on my medical notes the doctor had written "- Rectal examination revealed a normal size thyroid." I hope to get my appetite back soon.
So many thanks for me
Tony
Dear Hamble99b,
I have just answered a post, from you, and suggested that you contact me, by 'email'- I repeat this here and look forward to hearing from you.
Kind regards AndrewT
Have many symptoms of vasculitis but a tone of blood tests are normal!!
GPs Practices - Return to Normal? not convinced!
Hubby secured referral to Man Roy Inf but to a dermatologist?
