First flare up since diagnosis but now stable - Vasculitis UK

Vasculitis UK

7,865 members6,893 posts

First flare up since diagnosis but now stable

tinac73 profile image
6 Replies

Been off work since March with first flare up since diagnosed in 2010,I had a bad bout of depression with it also, during this time I found this website, which has helped tremendously, I know most of you have the more serious forms of the vasculitis and my thoughts are with you all, I have joined a gym and I go 3x a week, the manager has designed a exercise program that suits me with my arthritis. I have been talking to a counsellor who has referred me to a pain management clinic which I would have thought this would have been done at the beginning of the diagnosis. From the start I have been very naive about everything and felt I had no where to turn to. The depression has knocked my confidence and I need to build that up. I have weaned myself off my steroids and anti depressants and slowly lowering my methetrexate, I read an article in the daily mail another drug that is more effective (will get back to you about the name of the other drug, do not have the article with me at the mo, hopeless I am). People have commented on my appearance already ie losing weight, face is not puffy and less tired which has lifted my mood, I am not 100% , I know that will never, but I am trying to think more positively at the moment, speak to you all soon x

Written by
tinac73 profile image
tinac73
To view profiles and participate in discussions please or .
Read more about...
6 Replies
HiveMind profile image
HiveMind

Sounds to me like you are doing brilliantly! Well done! I know it took me ages to get off my steriods and it wasn't easy.

I wish you all the very best.

tinac73 profile image
tinac73 in reply toHiveMind

Thanks for your nice words Berkshirebird x

John_Mills profile image
John_MillsVolunteer

Sounds all very positive keep us posted.. Methetrexate and Azathioprine were not successful for John's WG... he is on Cellcept now.. it took 10 years for John to be weaned off Steroids...Good luck and take care :-)

AndrewT profile image
AndrewT

Glad that you found 'us'; I find just 'talking' to other people helpful.....After all all we are all 'in the same boat'. Best wishes.

AndrewT

Tony-LakeDistrict profile image
Tony-LakeDistrict

I hope its the way you have put it, & the weaning myself off steroids & metho` is on your doc`s advice. I like John have found Celicept (mycophenolate), to be the bees knees, a couple of months after changing from Methetrexate , my bloods where much improved

Very best of luck Tony

nannie profile image
nannie

Well done. I have been on steroids for 9 years without a break. I hate the moon face but I'm still on my feet so I put up with it. You were very lucky to find us so quickly. I went 9 years never having met anyone with the same condition. I felt a bit of a freak. Now I can chat and share problems and ask questions of people who really KNOW what its like.

Keep up the good work but don't be afraid to go back on the tablets for short periods if you need them. I am on happy pills at the moment after a bout of depression and they have given me my life back. Good luck. Keep well, Christine x

Not what you're looking for?

You may also like...

First "normal " illness since diagnosis?

Hi everyone. As I'm a newbie I would like your opinions please. Not had my first rheumy appt yet...
babssara profile image

Cutaneous vasculitis flare up

I'm experiencing a flare up so am feeling pretty low at the moment. I am currently taking 20 mg...
johanna-68 profile image

Urticarial vasculitis syndrome & hydroxychloroquine

Can anyone help by sharing their experience of hydroxychloroquine. Specifically anyone who has not...
Hoofprints profile image

http://www.theguardian.com/science/2014/dec/20/anti-inflammatory-drugs-could-fight-depression-immune-disorders

Worth reading this! For most of my adult life I had very severe depression (caused by several...

Azatheoprine

Hi guys, I've recently been under-going treatment for GPA and have responded really well to...
Marcus1988 profile image

Moderation team

See all
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator
Charlie_Harper profile image
Charlie_HarperAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.