It's just coming upto 4 years ago since I was diagnosed with CNSV. I me with my consultant last month, who suggested that it maybe time for me to wean off of the meds as I have had no flares. He said he'd discuss it with my rheumatologist in Oxford and to carry on taking the drugs until I hear differently. I'm currently taking 75mg Azaithoprine twice a day, aspirin, omeprazole, and co-trimoxazole.
At the meeting he told me that long term the drugs will start to do me damage However, if I come off of them, I could have more strokes, if the condition is still active. I don't know what to do
This morning I received the letter. I have to wean myself off, 25mg per month, until I'm off all together.
Has anyone else gone through this. Part of me is happy that I could be drug free but the other half is in total panic to say the least!!