If you haven't seen my posts before I am a young female, 23 to be precise, who has been living with WG since 2009.
Before I was diagnosed I was studying for a degree, I was diagnosed in October 2009 and was hospitalized as a result. I missed so much time off university I had to take a break for one year.
I am now approaching my graduation and have to produce a final year project. I am planning on creating a series of educational podcasts highlighting illnesses like this one. It is one that has a series lack of funding and public knowledge of the illness is minimal. (Did you know what it was before you got it?)
I have already released one episode exploring WG but in this episode, I want to look at how it's treated, it's different in so many people and so many people are prescribed different things.
This episode I want to use it to promote charities, support groups and events that raise awareness of WG. Obviously Vasculitis UK is on the top of my lists to include, so John & Susan, would you be up for contributing to this podcast?
I'd love to find out if there are any other charities, groups you guys use too.
Also, if there are any events raising money on behalf of charities this is also something I'd like to include!!