a bit more concerned now......

[Madbiker1]

Had an appointment at the unit that has looked after me for the last five years.

The biological meds have stopped as they simply didn't make enough of a difference to my eosinophilic asthma.

The concern now is that vasculitis is here. I explained that during the summer my neck got stiff and cracked when turning my head to the right. I put this down to just turning 50.

Since then I have had sores on my feet ( big ones) and smaller ones on my scalp.I have aching bones and joints and painful sinuses and rhinitis. My eyes also feel gritty.

I have had a rash between my legs for the last three years - creams do nothing. course of pred sees it diminish but it comes back.

Weight loss and change in bowel habits saw me have a colonoscopy and CT scan. Colonoscopy was normal - a month later I am still waiting for the scan results.

At the hospital they found traces of blood in my urine. I feel like I am mithering people but I feel absolutely dreadful.

I know something is wrong with me.I would like to know what.

[AmyS1]

speak to vasculitis uk helpline

[orthotist]

you are right to be concerned.blood in urine is a sign of kidney problems that can become serious I have gpa vasculitis ,been given rituximab twice in june only worked for10 weeks.get more blood tests done,try to see rheumatology again.my appointments been postponed 3 times.best of luck.i live near bromsgrove.

[AndrewT]

Dear Madbiker1,

Make an appointment, to see your 'own' People, and Tell Them EXACTLY what you have said here. Make sure, that you Stress, JUST HOW WORRIED you really are- and don't Hold Back.

I personally DON'T know, quite what, your 'Symptoms' Mean- That's what we have Doctors/ Consultants for! Can/ Will you let us 'Know' please?

AndrewT

[Madbiker1]

I gave the nurse a full list of symptoms - aching joints, bones, gritty eyes, aching back/ abdomen. I previously had huge sores on my feet and scalp and painful sinuses. I have also lost some weight.

The nurse took bloods and urine. She told me they would have me back in a month. Fair play to them - my appointment for end of November came through the next day.