What a great feeling: It has been a long tough... - Vasculitis UK

Vasculitis UK

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What a great feeling

stuc profile image
stuc
β€’24 Replies

It has been a long tough road but as of This week. I AM IN REMISSION. 😊😊.

I was diagnosed April 2017 with GPA, I spent 6 weeks in a French hospital in intensive care, 2 weeks of that I was in a coma. Since returning to the UK I have had 2 relapses and a number of issues relating to the disease but as of Monday , my rheumatologist has said that my condition has settled and is stable and is happy to now confirm that I am in remission. What a buzz . For everyone still waiting to get to this stage,enjoy it when it happens because it feels so good

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24 Replies
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gilders profile image
gilders

CONGRATULATIONS!!

Keep well!

stuc profile image
stucβ€’ in reply togilders

Thanks gliders

atomblaster profile image
atomblaster

Hey congratulations, I got gpa and have lost my sence of smell and taste can't wait for that to come back . I will be straight to the cake shop.

stuc profile image
stucβ€’ in reply toatomblaster

Thanks, I will keep my fingers crossed for you

Birmingham64 profile image
Birmingham64

Congratulations & best wishes

stuc profile image
stucβ€’ in reply toBirmingham64

Thanks loads

kitkatmum profile image
kitkatmum

Fantastic news!

stuc profile image
stucβ€’ in reply tokitkatmum

Thanks kitkatmum

Tbrz profile image
Tbrz

Congratulations- may I ask if you are off steroids?

stuc profile image
stucβ€’ in reply toTbrz

Thanks Tbrz,

Yes 5 months now, not had relapse in a year. Still on 225mg Azathioprine with a view to start tapering in 2022

NacMacFeegle profile image
NacMacFeegle

Congratulations, treat yourself to celebrate and keep improving!

stuc profile image
stucβ€’ in reply toNacMacFeegle

Thanks. That sounds like a plan

Suzywhizzo profile image
Suzywhizzo

I am really pleased for you and hope you remain in remission and life is good for you.

Take care

Suzy

stuc profile image
stucβ€’ in reply toSuzywhizzo

Thanks loads suzy

Paprika60 profile image
Paprika60

Wow! Many congratulations! You are very lucky!

Please share with us what you have done so far to be in remission. Or has it just calm down on its own? Does this happen? I so rarely hear of remission.

Wonderful to know. Hope you enjoy life to the full.

stuc profile image
stucβ€’ in reply toPaprika60

Hi Paprika60

Thanks

I have followed the guidance from my specialists. I am very lucky as I see a rheumatologist, renal consultant, respiratory consultant and an ent consultant every 6 months. I get my blood checked monthly without fail and more frequently if I start to become symptomatic. Follow the advice given re food restrictions and stay away from people with colds/infections

GPASufferer profile image
GPASufferer

CONGRATULATIONS! So happy for you. Stay strong. Thank you for sending this positive news to the rest of us.

stuc profile image
stucβ€’ in reply toGPASufferer

Thanks and stay well

1943bonnie profile image
1943bonnie

Hello Stue So happy for you. I also am in remission fo nine months now. god bless

stuc profile image
stucβ€’ in reply to1943bonnie

Thanks bonnie

Long may it continue for you

zoe69 profile image
zoe69ModeratorVolunteerVasculitis UK

Congratulations!

I have GPA too and I am in medical remission.

Cannot wait to hear the magical words. ' full remission '. Wishing you to hear them too.

stuc profile image
stucβ€’ in reply tozoe69

Thanks Zoe. We live in hope

grindhaus profile image
grindhaus

Fantastic news! thanks for sharing- it really sounds like a super great progression from a scary start - stay well!

stuc profile image
stucβ€’ in reply togrindhaus

Thanks grindhaus. Onwards and upwards

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