Hello,
I’ve been on a reduced dose of hydroxy for urticarial vasculitis for a couple of months and am working up to a full dose.
However I’ve started to feel really sore under the skin and have a throbbing head and a sore stomach. It just generally doesn’t make me feel good and a bit tired.
Has anyone else experienced this? Will it pass or might it be a sign that the drug isn’t right for me?
Many thanks for any advice x
In September 2017, I was on Plaquenil (hydroxychloroquine) for a month (I think it was a month), and I simply felt awful. I just couldn’t tolerate it. Sorry for your troubles.
Thanks so much for your reply. Did you try any other meds? My rheumatologist has suggested dapsone as a back up.
I’m “complicated,” but then aren’t we all. My diagnosis is probable Wegeners (GPA), which is presenting atypically. Because I’m having neurological symptoms my Rheumatologist says prednisone and Plaquenil aren’t going to be effective. He has ordered Rituxan infusions, which I will begin, once all is cleared with my insurance (I’m in the US) and scheduled at the hospital.