2 episodes of struggling to get my words out... - Vasculitis UK

Vasculitis UK

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2 episodes of struggling to get my words out, not sure if I’m stuttering or generally unable to get the words out!!!! Can anyone relate

Lisalou19 profile image
7 Replies

Approx 6 weeks ago I was out with my daughter , and was just generally trying to have a conversation and it was hard work. Words were hard to get out.

I brushed it to the side thinking I will drive myself insane with worry. It improved after about 3 days.

Last night in bed I had awful pains shooting through my ears into my head followed by nausea. I though I was having a stroke. After getting through the anxiety of it, I manage to get some sleep. Today I feel awful, almost flu like symptoms and these pains shooting through my head. Today again I noticed the struggle to speak, I can’t tell if I’m stuttering or lisping.

I feel in a really bad place. Is this normal to anyone else?

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Lisalou19 profile image
Lisalou19
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7 Replies
AmyS1 profile image
AmyS1

See your GP urgently.

Hellylou profile image
Hellylou

From experience I’d get into your gp asap, I suffered a no of tias that I nothing about until I’d had mri scans, better to be safe x

PMRpro profile image
PMRpro

This is never normal and if you can't see your GP - get someone to take you to A&E. It could be a TIA (mini-stroke) and needs investigating.

Kentish1 profile image
Kentish1

Hi there. I totally agree with the other comments to see GP or consultant urgently! I have also had progressive issues with memory and unable to talk some days with continued periods of stuttering and inability to get words for a couple of years now. I also get occasional stabbing pains in head which every consultant looks at me like I’m bonkers when mentioned. Had mri which came back clear thankfully, but it still continues and two years on still under slow investigation due to appointment shortages. I hope you get a more speedy investigation and every good wishes to you.

Lisalou19 profile image
Lisalou19

I had an appointment book with a private doctor this morning, and mentioned it. He is requested a referral back to him under the nhs with the need to do a mri scan .

I feel so disorientated, but I’m guessing this is just another side effect

I get the stabbing pains in the head too, they make me feel so sick, but I’m not sure if it’s the pain or it causes anxiety

X

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply toLisalou19

How are things now ? Have you had your MRI scan ?

Lisalou19 profile image
Lisalou19 in reply toSuzym2u

I’m under a nhs rheumatologist that doesn’t believe there is any nerve involvement

I am waiting for my doctor to receive a letter for a new referral to Professor DCruz. It does feel like I’m a ticking time bomb at times x

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