Hi, I am in remission from HSP with my last bout in Jun 15 and deemed in remission in about Sep 15. I was treated with 40mg pred initially, but had progression and was then treated with a 500ml iv methyl pred followed up by 40mg pred and 150mg of Azathiaprin. I was gradually weaned off the pred and was pred free in around Mar 16, I have also started tapering my Aza and am now on 75mg daily. However, when I reduced the pred below 20mg a day I developed a lot of joint stiffness and pain and this affected my knees, hips, shoulders, elbows and fingers the worst. Kneeling to tie my shoe laces is difficult, and getting back up even worse!! I also have psoriasis, this was kept at bay by the pred but this came back when I reduced below the 20mg mark.
I saw a rheumy back in Feb where they did bloods and some joint x-rays, they suspected that the pains could be psoratic arthritis (PsA) related. I then had a follow-up with the rheumy last week. I don't have any inflammation markers in my blood, nor did the x-rays show up any degree of swelling, which would be expected with PsA. Their suggestion was that my body was still readjusting to life without pred, although I was referred for an MRI on the worst affected joint. I was also referred to the rheumy physio to see what they could suggest for stretching, exercise or other to help with the stiffness and pains. I avoid taking any ibruprophen based NSAIDs as I have residual kidney damage from the HSP, paracetamol doesn't help, and I would rather not pop yet another pill on a daily basis if I can help it!!!
Anyone else encountered this after coming off pred? Any suggestions to help the stiffness or pains?