Just a update.Had my ncs and emg test.Was told at the end my left side was abnormal and that she would recommend a back MrI and that she would recommend I see a back specialist.Not sure if this will diagnosis cns vasculities which has been suggested ???
😐still awaiting further blood tests with hemotologists and possible full body ct scan has also been suggested.
A back specialist will have no experience of CNS Vasculitis ( I take it they are talking about an Orthopaedic surgeon ).
You need to go to either a multi disciplinary Vasculitis clinic or a Neuro that has experience in CNSV such as Dr Kidd. I am not sure what other info we can give you.
Thank you for reply.Had a bad few days.Have booked doctors appointment and will mention Dr Kidd then,then it will be a case of waiting for an appointment and getting an answer from him.
Can I ask on behalf of another WG person how people have found taking Methotrexate?
Wegeners- Persistent Cough with loss of appetite
Article in today's Telegraph re Covid vaccines do not work on the immunosuppressed
PREDNISONE TAPER AND DEPRESSION AND ANXIETY
