"My Churg Strauss Story" ( EGPA ) Looking for personal stories.

[Suzym2u]

We, at Vasculitis UK, would like to collect some personal stories about people's experience living with Churg Strauss ( EGPA).

If you would like to share your story please send a summary version ( A4 size ) to John Mills. [e-mail]

We are looking for stories both positive and negative.

Thank you

Susan

[Katie18]

I'll send you on if you like. What do yoy need them for? - it will help focus my mind

[Suzym2u Moderator Vasculitis UK in reply to Katie18]

Thank you No rush, maybe one or two weeks , is that ok?

[Katie18 in reply to Suzym2u]

Fine will do

[Alanfern]

I have CSS/ Vasculitis I'm looking for some support and too talk with people in similar situation

[Suzym2u Moderator Vasculitis UK in reply to Alanfern]

There is a Vasculitis UK Facebook support group where you can talk to others , some members do have CSS. But you have to remember you are very rare, around 1000 diagnosed here in the U.K. There is a list of local support groups on the VUK website where you can talk to others who are diagnosed with vasculitis. vasculitis.org.uk/about/fin...

If you would like to share your story you can write to John , [e-mail] . John has vasculitis but a slightly different type to yourself.