Patient Views on the Regulation of Medicines... - Vasculitis UK

Vasculitis UK

7,865 members6,893 posts

Patient Views on the Regulation of Medicines – How should we weigh the risks and benefits? And who should do so? Get your voice heard!

Suzym2u profile image
Suzym2uModeratorVasculitis UK
7 Replies

As part of a European research study, Genetic Alliance UK and researchers at the University of South Wales want to understand how patients perceive the risks and benefits of medicines. The work is important to ensure that patient views are valued in the regulation of new medicines.

If you are 18 or older, and you are a patient or a carer, you can help us by completing a short online survey. The survey includes questions about your experience with medicines, your view of the risks and benefits associated with medicines, and how you think medicines should be regulated.

The survey is available in several different languages. To complete the survey now please click on/go to one of the link below:

survey.glam.ac.uk/englishsu...

Your individual answers will be confidential, and you will remain anonymous (we do not ask you for your name). We will share the overall survey findings with other patient groups and relevant decision makers, such as regulators.

Written by
Suzym2u profile image
Suzym2u
Moderator
To view profiles and participate in discussions please or .
7 Replies
Wellsie profile image
Wellsie

done

hamble99b profile image
hamble99bVolunteer

done

Suzym2u profile image
Suzym2uModeratorVasculitis UK

Both me and John done too :-)

valwood profile image
valwood

Done

StephanieDiane profile image
StephanieDiane

Done

BronteM profile image
BronteM

Done

Albasain profile image
Albasain

On the case and done it too

Not what you're looking for?

You may also like...

Burden of Medicines

About us …. We are four students studying to become pharmacists and we are undertaking a project...
Rubana8 profile image

UPDATE: More than hundred responses! We did it!

I have posted this before. They have only 28 responses from vasculitis patients, if we want to be...
zoe69 profile image
Moderator

You are invited to participate in an important study about the effects of glucocorticoids (steroids).

You are invited to participate in an important online study about the effects of glucocorticoids...
John_Mills profile image
Volunteer

Please read the leaflet and then do the survey

The most common medication for those that have vasculitis is steroids (prednisolone). Vasculitis...
zoe69 profile image
Moderator

Your help is needed - COVID19

The COVID-19 pandemic has quickly infected more than a million people. While most people with...
John_Mills profile image
Volunteer

Moderation team

See all
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator
Charlie_Harper profile image
Charlie_HarperAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.