Is anyone else taking part in the study to d... - Vasculitis UK

Vasculitis UK

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Is anyone else taking part in the study to develop classification and diagnostic criteria for primary systemic vasculitis.

CathT profile image
11 Replies
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CathT
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11 Replies
hamble99b profile image
hamble99bVolunteer

is there an explanatory link?

CathT profile image
CathT in reply tohamble99b

Sorry I don't know, I was approach at my hospital appointment yesterday. It is being run in the UK by university of Oxford Dr Raashid Luqmani. Just checked this website ndorms.ox.ac.uk Looked under trials there are a few there.

Suzym2u profile image
Suzym2uModeratorVasculitis UK

Is this the one you are taking part in Cath? ndorms.ox.ac.uk/clinicaltri...

CathT profile image
CathT in reply toSuzym2u

The second one listed, development of disease assessment in systemic vasculitis.

John_Mills profile image
John_MillsVolunteer

I think this link might explain better

research.ndorms.ox.ac.uk/pu...

joylucy profile image
joylucy

Yes, I am a participant in the DCVAS and PEXIVAS studies, and live in Australia

CathT profile image
CathT in reply tojoylucy

Hi, if you don't mind me asking what type of vasculitis do you have?

joylucy profile image
joylucy in reply toCathT

Hi CathT, I have microscopic polyangiitis (MPA), diagnosed in July 2011

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply tojoylucy

If you don"t mind me asking Joylucy where are you seen in Australia?

Chris-Bromsgrove profile image
Chris-Bromsgrove

I also have MPA (diagnosed in 2012) and I'm a participant in DCVAS and PEXIVAS clinical trials. Quite interesting that participants in these trials are spread far and wide.

CathT profile image
CathT

I was told I had unspecified vasculitis last year but now they say they are not sure as bloodwork also shows lupus! As my symptoms are all the same as vasculitis they has me to join the study.

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