Happy Monday everyone! I'd love to hear your different perspectives on this.
I actually didn't have much extensive knowledge about clinical research until I started working at CISCRP in 2017. I always knew that medications had to tested but that was about the extent of what I knew about the process. But since joining CISCRP I've learned so much!
I don’t know much. It seems like a path to go down when all approved medications fail but that said I am aware of trials which compare one drug with another. For me I wouldn’t go looking for a trial unless all else had failed or my Consultant wanted to enrol me on one. That said your post is making me think that maybe some of my biopsy could be used in a trial. I am willing to be involved in research but unsure where to start with getting involved. Is this the type of response that you are looking for?
Hi Bow-19 thank you for sharing your thoughts! Upon joining CISCRP I was surprised to learn even healthy individuals participate in clinical trials just to further public health which is very admirable. If you are interested in seeing what trials you may be eligible for I would recommend using CISCRP's service called Search Clinical Trials. It's as easy as filling out our online form and we'll get back to you with a list of trials in your area. You can find more information here: ciscrp.org/services/search-...
Is your organisation based in the USA? I am in the UK, would it cover trials here too?
I took part in the ICON8 trial at the Christie in 2014. It was to trial the best way to deliver the carboplatin and paclitaxol combination for the treatment of ovarian cancer. The trial was a three arm set up, each arm with the same amount of the drugs being delivered but the delivery timeline differing with the aim to discover the kindest delivery of the drugs for the patient to try to reduce the side effects a little and make the treatment less arduous for the patient.
I was told about it when I first attended the hospital and I could see only benefits both for myself and others.
I was also approached at the hospital where I had my surgery to see if they could use the organs and tissues removed from me for research purposes and I agreed to this also as I felt it could improve possible future approaches in the treatment of and the diagnosis of ovarian cancer. ❤️Xx Jane
Hi Cropcrop thank you so much for sharing your story! It really is inspiring to hear stories from patients like yourself.
The way that I found my first and most of the trials that I've participated in were found on Craigslist. But since then I have found some through other sources, emails that I've received, Ciscrp and other health organizations.
Hi simoneellen that's interesting I didn't realize craigslist was another place individuals could find clinical trials!
Hi Iperez, well I didn't know at the time that Craigslist would have clinical trials, I just happened to see one and it went from there. If you click on volunteers, etc, and event, those are the ones where you'll find clinical trials when they have any in your area. Also if you type in clinical trials you'll see a listing and might see something that would work for you.
Neither did I until I became involved in a patient-led clinical research project through User-Focussed Monitoring. To be able to help make a difference in my local services was awesome. To me research is everything; services are better equipped to give improved outcomes if research shows them something different is more effective
