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Tolvaptan
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Low Sodium Level
Update : I started
Tolvaptan
and sodium going up, Dr confirmed Xtandi did not cause lower sodium.
Update : I started
Tolvaptan
and sodium going up, Dr confirmed Xtandi did not cause lower sodium.
God_Loves_Me
in
Advanced Prostate Cancer
6 months ago
Are you on Xtandi (Enzalutamide), and reported the side effects of low sodium?
Update : I started
Tolvaptan
and sodium going up, Dr confirmed Xtandi did not cause lower sodium.
Update : I started
Tolvaptan
and sodium going up, Dr confirmed Xtandi did not cause lower sodium.
God_Loves_Me
in
Advanced Prostate Cancer
6 months ago
How much fluid a day when taking Tolvaptan?
It’s just that I have read that when taking
Tolvaptan
one should drink at least 3 l of water a day incl. 0.5 l before going to bed. Thank you
It’s just that I have read that when taking
Tolvaptan
one should drink at least 3 l of water a day incl. 0.5 l before going to bed. Thank you
Kristo
in
Kidney Disease
11 months ago
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Fatigue on Tolvaptan
Hello all, I've started taking
Tolvaptan
(45/15) and I'm experiencing extreme muscle fatigue and brain fog. Does anyone else experience this? Any recommendations on how to deal with this?
Hello all, I've started taking
Tolvaptan
(45/15) and I'm experiencing extreme muscle fatigue and brain fog. Does anyone else experience this? Any recommendations on how to deal with this?
aab2489
in
PKD Charity for Autosomal Dominant PKD
2 years ago
What is the normal kidney volume(TKV) ? How can we know the ADPKD progression using kidney volume?
What volume shows the severe effects of pkdI was on
tolvaptan
for last 4 years and it does not seem to help much, but my doctor wanted to continue
tolvaptan
for another year
What volume shows the severe effects of pkdI was on
tolvaptan
for last 4 years and it does not seem to help much, but my doctor wanted to continue
tolvaptan
for another year
Kenchappa
in
PKD Charity for Autosomal Dominant PKD
2 years ago
Increase in creatinine at the beginning of the use of tolvaptan ?
Please write how your blood creatinine increased after starting
Tolvaptan
treatment? I have been taking
tolvaptan
for less than two months. when I started my creatinine was 1.7 mg / dl and now it is 1.94 mg / dl.
Please write how your blood creatinine increased after starting
Tolvaptan
treatment? I have been taking
tolvaptan
for less than two months. when I started my creatinine was 1.7 mg / dl and now it is 1.94 mg / dl.
gorczes
in
PKD Charity for Autosomal Dominant PKD
2 years ago
Tolvaptan
Just wondering if
Tolvaptan
is provided by the NHS. Thank you.
Just wondering if
Tolvaptan
is provided by the NHS. Thank you.
Seur
in
PKD Charity for Autosomal Dominant PKD
2 years ago
Drop in kidney function
I’m utterly terrified and fear I may be put on
Tolvaptan
Any comments of other people experience on this medication or advice would be very much appreciated. I understand there is huge quantities of consumption of water involved!! Thanks Andrea Beesley
I’m utterly terrified and fear I may be put on
Tolvaptan
Any comments of other people experience on this medication or advice would be very much appreciated. I understand there is huge quantities of consumption of water involved!! Thanks Andrea Beesley
tillymint16
in
PKD Charity for Autosomal Dominant PKD
4 years ago
Tolvaptan and PLD
Hi My nephrologist is consider starting me on
Tolvaptan
. Has anyone heard of the the medication damaging the liver as I also have PLD as a lot of PKD patients sometimes have. Dont really want to start on this as my GFR is 52... I’m working hard on getting it higher in 2020.
Hi My nephrologist is consider starting me on
Tolvaptan
. Has anyone heard of the the medication damaging the liver as I also have PLD as a lot of PKD patients sometimes have. Dont really want to start on this as my GFR is 52... I’m working hard on getting it higher in 2020.
tillymint16
in
PKD Charity for Autosomal Dominant PKD
5 years ago
Been Away
I saw my Nephrologist end of last month, we discussed me taking the meds
Tolvaptan
because I have bad bouts of me so tired I could hardly do anything. I am waiting to hear what my function is the last check I had just entered stage 3.
I saw my Nephrologist end of last month, we discussed me taking the meds
Tolvaptan
because I have bad bouts of me so tired I could hardly do anything. I am waiting to hear what my function is the last check I had just entered stage 3.
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
5 years ago
I'm so confused about this disease
In February on 2016 I had an abdominal ultrasound and the report reads in part: "no obvious solid or cystic lesions of the kidneys are noted" In 2018 I am told I am loaded with cysts and may need to try this new medicine....
Tolvaptan
.
In February on 2016 I had an abdominal ultrasound and the report reads in part: "no obvious solid or cystic lesions of the kidneys are noted" In 2018 I am told I am loaded with cysts and may need to try this new medicine....
Tolvaptan
.
JoanneManning
in
PKD Charity for Autosomal Dominant PKD
6 years ago
Tolvaptan
Has anyone been prescribed
Tolvaptan
to delay dialysis? It was just approved last week in the US for PKD. Was wondering how you feel on it or about it. In the US it's called Jynarque. Any feedback appreciated
Has anyone been prescribed
Tolvaptan
to delay dialysis? It was just approved last week in the US for PKD. Was wondering how you feel on it or about it. In the US it's called Jynarque. Any feedback appreciated
Bunkin
in
Early CKD Support
6 years ago
FDA Approves Tolvaptan for Treatment of ADPKD
More here: https://www.businesswire.com/news/home/20180424006422/en/Otsuka%E2%80%99s-JYNARQUE%E2%84%A2-
tolvaptan
-Approved-U.S.-FDA-Treatment
More here: https://www.businesswire.com/news/home/20180424006422/en/Otsuka%E2%80%99s-JYNARQUE%E2%84%A2-
tolvaptan
-Approved-U.S.-FDA-Treatment
cmaxwell78
NKF Ambassador
in
Kidney Disease
6 years ago
Tolvaptan Clinical Trial for ADPKD Patients
"
Tolvaptan
slows cyst growth in ADPKD patients by preventing a hormone called vasopressin from binding to its receptor on renal tubule cells.
"
Tolvaptan
slows cyst growth in ADPKD patients by preventing a hormone called vasopressin from binding to its receptor on renal tubule cells.
cmaxwell78
NKF Ambassador
in
Kidney Disease
6 years ago
Starting Tolvaptan...........
Right told today i need to get started on
Tolvaptan
. Got the script and now have the drugs. I was told to start it this weekend so i can gt use to the side effects prior to going back to work on Monday. If im honest im scared.
Right told today i need to get started on
Tolvaptan
. Got the script and now have the drugs. I was told to start it this weekend so i can gt use to the side effects prior to going back to work on Monday. If im honest im scared.
123Ange
in
PKD Charity for Autosomal Dominant PKD
7 years ago
Tolvaptan
I have a quick question directed at any of those of you who are now on
Tolvaptan
. My 13 year old PKD daughter has been selected for the new paediatric clinical trial for
Tolvaptan
. I've done a bit of research up myself and it seems the only side effects so far are thirst and increased need to wee.
I have a quick question directed at any of those of you who are now on
Tolvaptan
. My 13 year old PKD daughter has been selected for the new paediatric clinical trial for
Tolvaptan
. I've done a bit of research up myself and it seems the only side effects so far are thirst and increased need to wee.
JDelve
in
PKD Charity for Autosomal Dominant PKD
7 years ago
Does one need to pay for Tolvaptan?
Hi, Just been to see my specialist and as my kidney has started to decline have decided to give
Tolvaptan
a go. Does anyone know if one needs to pay for the prescription or if the NHS funds it? I work so no exemption from other prescriptions such as blood pressure meds. Thanks a lot.
Hi, Just been to see my specialist and as my kidney has started to decline have decided to give
Tolvaptan
a go. Does anyone know if one needs to pay for the prescription or if the NHS funds it? I work so no exemption from other prescriptions such as blood pressure meds. Thanks a lot.
v4seem
in
PKD Charity for Autosomal Dominant PKD
8 years ago
Tolvaptan
Just been to see my renal specialist yesterday who is amazing, and she is suggesting that would be a good candidate for
Tolvaptan
, I'm a 47 year old female with extremely large kidneys & GFR of 42 with many other complications.
Just been to see my renal specialist yesterday who is amazing, and she is suggesting that would be a good candidate for
Tolvaptan
, I'm a 47 year old female with extremely large kidneys & GFR of 42 with many other complications.
JanWellcome
in
PKD Charity for Autosomal Dominant PKD
8 years ago
I am really fed up and can't live with edema (water retention) anymore. Does anyone has any thoughts to share about this?
Primitive antibiotic Demeclocycline (Ledermycin) not produced in most of the countries now, except in India and few others, has that effect but I don't know how to get it or new drug for this -
Tolvaptan
but this one is extremely expensive. This is last thing I can try but who knows will they work.
Primitive antibiotic Demeclocycline (Ledermycin) not produced in most of the countries now, except in India and few others, has that effect but I don't know how to get it or new drug for this -
Tolvaptan
but this one is extremely expensive. This is last thing I can try but who knows will they work.
Hidden
in
Thyroid UK
8 years ago
Midodrine/tolvaptan combo improves ascites control in cirrhosis
http://www.healio.com/hepatology/cirrhosis-liver-failure/news/online/%7B2d471f89-06c7-4acf-9823-f2aee71f3719%7D/midodrinetolvaptan-combo-improves-ascites-control-in-cirrhosis?utm_source=maestro&utm_medium=email&utm_campaign=hepatology%20news
http://www.healio.com/hepatology/cirrhosis-liver-failure/news/online/%7B2d471f89-06c7-4acf-9823-f2aee71f3719%7D/midodrinetolvaptan-combo-improves-ascites-control-in-cirrhosis?utm_source=maestro&utm_medium=email&utm_campaign=hepatology%20news
kcohen
in
HFI Connect - Hepatitis
9 years ago
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