Good morning all you lovely PKDers out there! I have a quick question directed at any of those of you who are now on Tolvaptan. My 13 year old PKD daughter has been selected for the new paediatric clinical trial for Tolvaptan. I've done a bit of research up myself and it seems the only side effects so far are thirst and increased need to wee. Is this your experience? My daughter is naturally a little nervous. We'd love to hear your stories, thoughts and experiences so she can decide. She's excited at the thought of being a 'trail blazer' for other children (including her own little brother and cousins), but she's scared that there maybe other unwanted side effects. We'd love to hear from you experienced folk! Xx
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