Reduced dose, feeling crap....: doc has told me... - Thyroid UK

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Reduced dose, feeling crap....

Sam75 profile image
8 Replies

doc has told me to now alternate, I day 150 next 125, levo, after just a few days Im feeling awful. quite depressed, cold, and no energy.

Ok I am 75, but I was feeling fine, well reasonably so.

My doc is a lovely lady whos mum also suffers hypo, so I tend to do as Im told, any suggestions appreciated.x

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Sam75
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8 Replies
Moggie profile image
Moggie

Go back to your normal dose and put a phone call into her telling her what you have done. Explain to her how ill you have started to feel since the reduced dose and that you are not prepared to let it get any worse.

I know the above sounds harsh but until you flag up to her what is happening and make her realise that you are not happy with the reduced dosage there is not a lot she can do. The problems will come if she refuses to prescribe your original dose, but as she has a mother with thyroid problems and is fairly knowledgeable on the issue then you stand a good chance of getting your levo put back up.

Hope this helps.

Moggie x

Sam75 profile image
Sam75 in reply toMoggie

Thank you Maggie, I was thinking if I argued with her it might cause problems for me. but I will get back to her x

shaws profile image
shawsAdministrator

Age doesn't came into the treatment of hypothyroidism. Doctor's have no reason to adjust medication according to your TSH level except if you were overmedicated and we we would be aware of that before before we saw the GP.

This is an excerpt and cursor to the question dated January 25, 2002

Dr Lowe: Your observations don’t suggest to me that your pituitary gland isn’t functioning properly. In fact, your observations are consistent with what science tells us about a patient's T4 dose, her TSH level, and her metabolic health or lack of it. If the goal of a doctor is metabolic health for his patient, he has no scientific basis for adjusting her thyroid hormone dose by her TSH level. If the doctor is going to make the imprudent choice of treating the patient with T4 (rather than T3 or a T3/T4 combination), he should be aware of the relevant physiology and treat her on the basis of it. Otherwise, he's likely to ruin her health, as your doctor appears to be doing to yours.

web.archive.org/web/2010122...

Sam75 profile image
Sam75 in reply toshaws

Thank you for your reply x

Clarebear profile image
Clarebear

Do you have your latest thyroid blood test results? If so please can you post them on here together with the ranges? I not then I think it would be a good idea to get hold of a copy from your surgery and then post them here :) xx

Sam75 profile image
Sam75

Thank you, I will ask for a copy on Monday when she is there x

I was diagnosed underactive back in 2008 and until late summer 2011, I felt like shit after starting with thyroxine, no matter that I upped, downed, alternated doses. Then, one morning I woke up like from a bad dream that had lasted over three years.

I think for some of us, especially if we've been untreated, perhaps for years, the hormone can have all kinds of bad effects on us until the body adjusts?

So, how long have you been taking your meds?

Sam75 profile image
Sam75

I was diagnosed hyper, 12 years ago, put on carbimazole for 6 months then had to take 2 capsules at different stages of radio active iodine.....soon after thyroxine...creeping up on dosage over the years, I have never asked for a copy of my levels, always trusted my lovely doc to know best, but I guess Im luckier than many, I have some realy good days when I don't ache much .Iv also learned to use the computer some ... so Hey! what am I moaning about.

Not today at least X

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