Hi all, I've been reading all the bloggs for months now and thought i would add one. I'm 47 year old male, on my 41st birthday I was taken into hospital with a suspected heart attack. This was ruled out however i did have pneumonia and displayed eratic heat rythms, chest pain and feeling very sick. I was then sent to heart failure clinics and put under a cardiologist. All this was ongoing for the next 3 years. During this period i had numeous blood tests which did show high thyroid hormone levels, however any subsequent tests where always normal. so at this point i was on stable medication and told that i would just continue to take these indefinately as any condition that i had would be taken care of by these med's. Going back to when i was first admitted to hospital when they carried out an angio-gramme which was normal although my heart was slightly enlarged - Diagnosis, Dilated cardiomyopathy??? I lived with this for 4 years taking my medication and following all the doctors orders, all the time constantly complaining about not feeling well. Just over two years ago my wife called the doctor and asked for some advice because of my constant complaining about being unwell and was on and off work all the time. My GP thought that maybe the medication i was taking was working against me and not for me, however she sent me to see a cardiologist for a once over, again!!!. This SPECIALIST said i was fine, nothing wrong with my heart and to stop taking the meds immediately, shook my hand and said he didnt need to see me again (all this in 45 minutes). Within 7 days of stopping the beta-blocker i was in bits, aches paines, palpatations, headaches, sickness insomnia, poor eyesight overnight, sore throat and generally feeling unwell. Blood tests then revealed that my thyroid level was abnormally high, GP thought that we would just check this to be certain, six weeks later same result.
Where am i now.......Blood tests, Endocrinologist, Opthomologist, Cardiologist. Dianosis - Graves disease, Thyroid eye disease, massive depression.
After months of appointments and thyroid drugs (Carbimazole) and beta blockers and lots of time off work!!!! Symptoms now where, severe migraine, eye pain, joint pain (hands and wrists espesially) breathlessness, mood swings, absent mindedness, forgetfulness a.absolute fatigue so bad it was painful.
I was put on a strict regime of carbimazole (30mg) propananol (40mg) with the addition of several other pain killers, sleeping tablets and anti-depressents. Blood test every 5 weeks. Finally the endocrinologist was happy that i could recieve some treatment (aparently i could not recieve treatment while the eye disease was active?????).....So
I had radio active iodine treatment a fortnight ago.............I have started back on carbimazole and still on all the other coctail of drugs. I feel absolutely awful, headache, restlessness, sore eyes, insomnia etc etc...............at least the joint pain has subsides. Thats where i am at right now. I have read all the comments and bloggs left by everybody and can really feel for everyone. I read one blogg asking about unhappy bowels, me too.constipation then diohrea a so on. I have about had enough
reading through this it sounds like a rant and rave.........!!!!! Trust me this is an abbrieviated version....
Title edited slightly by Admin to draw attention to it