I was diagnosed as hypothyroid 3 years, or so, ago. At that time I was suffering with anorexia. I have since recovered completely from anorexia (physically and psychologically), with a current bmi of 25.5.
2 years ago, my g.p. noticed both my t4 and tsh were low. I was referred to an endocrinologist, who took me off of thyroxine. I stayed off it for 6 months, or so, but became symtomatic quite quickly.
Many times I was told by g.p.'s that "thyroid is not the problem!"..."it must be a mental health issue", etc. However, a locum g.p. looked at my t3, t4, and tsh, revealing that my t4 AND tsh were BOTH low, so I was put back on thyroxine.
I have been back on 125mg for around 6 months, and I feel much better. Also, I have regular (as clockwork) menses for the first time in a-g-e-s! (My bmi has been this high for over a year)
However (I am getting to a point!), the endocrinologist I saw previously has written to me saying "...I understand you have restarted thyroxine, although again there was very little evidence of significant hypothyroidism in the pre treatment blood test. Just to be on the safe side I think we should do a scan of your piuitary gland to make sure nothing is a miss..."
Firstly, I feel this letter is worded a bit patronisingly, also, I'm terrified he's going to take me off of thyroxine again, and I'll lose my life to the fatigue again!
What does this all mean, and what should my course of action be?
Many thanks for reading all this.