Hi. I joined the facebook support page and have been humbled by everyones stories of their journies. I thought I would share mine with everyone here who may not have seen it
. I had an underactive thyroid for 30 years with a multinodular goitre. 9 years ago it was discovered that one of the nodules had become severly overactive so my thyroid was removed ( but not before having been extremely ill for 2 years and sent for a variety of nasty tests for cancer in other parts of my body !) I recovered and was stableised on 200mcg Levothyroxine . I have had several operations since though..broken back; ; carpal tunnel ops( wondering if they necessary as they found after that I had actualy broken my neck.!) Then last year as a result of scans to my neck I was found to have a brain tumour...what a lucky girl I am !!! The removal of this led me to be paralised down my right side and I spent several weeks in rehab learning to walk again. I began to feel well again...thats until I changed gp practice due to relocation and new GP decided I needed an "mot" !. She decided I was overdosed on levothyroxine and reduced it in stages from 200 to 125 at which point I thought I was dying and also suicidal. Fortunately I know the senior partner and he has interveneed and I am on the way back up to 200 now. Still dont feel great but feel better ! Angry that I was made ill for no good reason. I empathise with evryones symptoms..we all seem to have so many in common.Thyroid UK has been my life support and I thank everyone there for it. Sorry for the rant !!! Its been a tough time, especially as I was widowed 16 years ago with a ten year old still to raise. I got there and he is now a doctor too !!! People have told me I am strong...have not really felt it, and to be honest often embarrased by having to say there is yet again something wrong with me. Thats why I am cross with this latest thyroid episode as I was recovering well from my brain tumour op even though I still walk a bit wobbly !!!
There is always a light at the end of the tunnel, however long and dark it is. We just have to struggle to get there at times xxx