numbness and headaches and extreamly cold - Thyroid UK

Thyroid UK

140,282 members164,999 posts

numbness and headaches and extreamly cold

whiteley profile image
3 Replies

i am suffering from severe headaches neausea numbness in fingers and toes and lower legs been hypo for 7 years but symptoms have got extreamlly bad the last 2 years the headaches make me cry and also the coldness with results now in range why am i feeling so bad also my tyhroid glands hurt all the time and also alot of joint pain been on this site for 2 years now not feeing any better see 2 endos now thinking of going private dont know whwt else to do they both tell me its not my thyroid on hrt and 125mg of tyroxine

Written by
whiteley profile image
whiteley
To view profiles and participate in discussions please or .
Read more about...
3 Replies
PaulB profile image
PaulB

Yep

Unfortunately all familiar, been wiped out the last week.

Subclinical for 30yrs and only treated in the last 4 years after becoming seriously ill. Think the long period untreated is the important thing.

This comes and goes according to Levo dose, amount of time in office and by the feel of it, batch to batch difference in the Levo. MHRA need to sort this variability out, or my thyroid could be all over the place again.

Keep optimistic and try exercise outdoors, works wonders for me.

Best wishes

Paul

Jackie profile image
Jackie

Hi Make sure you have had TSH T4 and Free T3 tested. Also sounds like you need an ultra sound, a good endo will have done all these. Also make sure you have had at a minimum ferritin and vit D done , Vit d is hormonal and very important with thyroid problems.If you do not know or have not had a print out ask the secretary`s of the endos to send you a print out with the ranges ( all different),Also make sure you have had a diabetes test as hormonal the symptoms are similar. On treatment T4 should be in top third of range and FT3 near the top.

shaws profile image
shawsAdministrator

If you are able to afford it I would go private and Thyroiduk do have sympathetic doctors who include clinical symptoms in their diagnosis and do not only refer to the TSH.

Email Louise.Warvill@Thyroiduk.org and ask for details.

Not what you're looking for?

You may also like...

Bad headaches

Hi my dose was recently dropped from 2 1/2 grains to 2 1/4 grains of ndt due to my t3 going over...

Headaches and Stress!

Hi everyone! Been under incredible lot of stress in recently months. But the last couple of days...

Levo and headaches

I have auto-immune hypo-thyroidism. I got totally disabling headaches sometimes and energy problems...

headaches from thyroxine?

Hi, I take 200mcg thyroxine per day and seem symptom free, healthy and fine. Recently, I stopped...

Amitriptiline for headaches

What are your thoughts on amitriptiline for headaches please? I’ve just seen my GP as I started...