Hi, I know I will get lots of controversy with this but I feel very alone right now. Back in 2006 I was really unwell and blood results detected almost no T4 and super high TSH so GP started me on levothyroxine. Although prior to taking it I was tired etc I was used to that feeling and battling the symptoms - the worst thing honestly was the weight gain. Anyway, the levothyroxine gives me headaches so I went to see an endo. 2 hours of waiting for her to say its hasimotos take your meds you will be fine....anyway, I don't have a good relationship at all with the meds and aside from when I was pregnant in 2010 (the headaches were worth it) I rarely take them. My weight is terrible now and I know the risks I'm taking but whenever I try and speak to the GP his attitude is just take them - but the headaches I get are debilitating to say the least. Also GP says it doesn't matter if I just go straight back on my 'normal' dosage of 250mcg straight away. I've tried taking less to see if that might lessen the headaches and it doesn't - I've used different pharmacies for different brands and no joy there. I can't stand the headaches but I'm terrified of not being here for my children bearing in mind this has now gone on since 2006 and aside from during a 6 month pregnancy (prem baby). I haven't taken them at all regularly (maybe 3 days a month). Also I've stopped having my thyroid bloods done because I obviously know there isn't a point, it's just wasting time and money for the health service.
I am getting worse symptoms of the hypothyroidism now as in brain fog is serious, tiredness (though I manage) etc. last week I had to take my hubby to a and e for an elbow injury and staff seemed more concerned by how terribly pale I am as well so any advice on how best to restart the meds or anything that might help me take them would be useful please.