Thyroid UK
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8 weeks pregnant and tsh extremely high....worried

Hi

I am 8 weeks pregnant and just had routine blood tests and my tsh levels come back extremely extremely high at 17. My obstetrician diagnosed hypothyroidism and sent me to see a go that has put me on 50 levothyroxine. I am so worried as I have seen that this condition can effect the babies brain development in early pregnancy and lead to low iq and learning difficulties. I had no previous symptoms other than tiredness and bloating, but put it down to pregnancy. I am so petrified that I have damaged the baby and I can't get it out of my head....I was only diagnosed 2 days ago so am new to thryroid problems....can anyone put my mind at rest or share similar experiences....I live in Dubai also so very far away from family x

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Firstly congratulations

Please dont worry about harming your child through your illness, you are lucky in that it was picked up early and treatment started immediately. A TSH of 17 while high is not "extremely" high. I'm not an obstetrician, but am the mother of an autistic child, probably because my hypothyroidism was never picked up on, so I have read up on quite a lot about it. Low IQ and learning difficulties should not affect your child so long as you are treated adequately as it is not being treated in the later part of pregnancy which affects this. Motor skills can be affected in early pregnancy, but again as you have been diagnosed and started treatment within the first 12 weeks, then there really is not much to worry about, at worst he/she wont be an Olympic class sprinter, but there is no reason to think he/she wont be a happy healthy child.

Its natural to worry that there could be something wrong with your unborn child, every mother feels the same whether they have a medical condition or not, though it must be a lot harder being apart from your family who can give you support.

Best advice is make sure you rest and dont do to much, and make sure you take your meds (especially your folic acid) and keep on top of doctors appointments, and dont stress to much about it, but enjoy the pregnancy (babys sense stress), and make sure you post a piccy in 7 months time :)

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My wife is also carrying 7 weeks and she has TSH level of ~88 (ultra high), two weeks ago. However dr. suggest to take med (thyronorm - 100mcg) and she is taking med. from last five days, also we met Endocrinologist yestrday and told us several things about thyroid problems. My only question to you is, does these levels of thyroid can affect mental capabilities to our child ?

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Unfortunately I am contacting you desperately in need of answers, not yet able to offer my own advice. I am several weeks pregnant (not certain of exact gestation yet because although I missed my period last month the first pregnancy test was negative... I'm very concerned the hormone imbalance caused the false-negative after missed period). I found out this morning that my TSH is over 30. I'm getting bloodwork tomorrow to determine the gestation dating. This is the only recent post I see on this topic. Would you mind sending me an update? Perhaps we could inform one another as we go through this. A reply from anyone would be much appreciated.

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I am 8 weeks pregnant and found out today that my TSH levels are 26. Been rushed through for a midwife appt this wek and picking tablets up tonight, repeat bloods in 4 weeks to check TSH levels are back to normal.

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Hello there annaleigh37. Hang in there. I know how terriefied you must be. My TSH was 30 around 6 weeks. I'm almost 14 weeks now and my nerves have calmed after several medical consults. My only immediate advice is possibly demand testing every 2 weeks until your levels are clearly in range and stable. I am still testing every 2 weeks because mine went quickly into hyperthyroid. I also found out in the process that I have elevated TTGA (celiac antibody) even though I have been gluten-free for two years. Now I am on Tirosint (gluten free T4). Before I was on NDT but T3 is not advised during pregnancy, so I was hypothyroid and on T3 for at about the first 8 weeks of my pregnancy. I think the stress I endured with worry was likely as risky as low thyroid. If you want to email me directly, my email is kimberly.jacoby@gmail.com

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Thanks for the reply. Also, just wanted to add that I have a history of missed miscarriages so am trying not to get my hopes up too much.

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Did you had your baby?

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How is your baby now? Is everything ok

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Everything is going good now, we were blessed with a healthy "baby girl", 6 month ago.

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Im so happy for you. I have the same issue and thats why i asked. Thank you so much for your reply. Can you also tell me, after your wife started medicine did her tsh levels go down? Mine are 73 i was on 50 mg now on 100 mg. Next week i have blood test. Im 11 weeks now and was diagnosed and start medication at 6 weeks.

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If you see this will you please message me? I too am 7 weeks with a tsh if 88 and super worried. How is your baby now? Did everything turn out okay?

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Just wanted to add to the excellent post above.

Make sure you are taking your levo with only water, at least an hour before food and not with any other supplements. This will help to maximise absorption.

Louise

xx

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Hi, congratulations first of all :)

By my own experience, when I got pregnant and learnt I was I wav lucky to be working in a hospital. I went straight away to the endocrinology department and told them I needed my levels to be checked please.

so they did. Sent me straight away to get the bloods done end within 48hours I spoke to an endocrinologist.

She kindly explained me why she had to increase my dose.

From 150mcg I used to take, went to 175 and two months later or so I went to 225mcg/day.

My problem arrived when I moved country and from doctor to doctor no one has been able or capable to help me.

But that's another story.

Just make sure you are in good hands, you get bloods done and results updated and take your medication.

Also vitamins, folic acid and fish oil(I was told) every day.

My daughter is full of beans, very advanced for her age and a happy bunny.

All the best!

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Hi how is your baby now.Would u plz advice me i am in first trimester with extremely high tsh. On medication now. Your valuable information will help us.

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The only thing I have to add to the great responses above is that my thyroid function dropped dramatically while I was pregnant with my daughter and, because it was rectified quickly with an increase in levothyroxine, she turned out fine. No physical or mental problems. In fact she is a very bright and happy girl :)

Just make sure you do have your thyroid function monitored at least every trimester in case your dose needs increasing.

Don't forget to check out the main Thyroid UK website for more information on hypothyroidism.

thyroiduk.org.uk/tuk/index....

And congratulations :)

Carolyn x

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Hi try not to worry with your good news. I had untreated Hypo when pregnant, both children very high IQ`s, good degrees and masters. If possible have a Free T3 test, often with high TSH it is the low Ft3, if low then treatment with T3 should help a lot.

best wishes for a wonderful baby.

Jackie

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hi Jackie

I am Preet Gill from India. I am 8 weeks pregnant and my TSH level is 10.6 uIU/ml. My gynae prescribed me some medicines. But my pregnancy scan is normal. Everything is perfectly fine. I had hyperthyroidism 8 years back with was treated and the problem was completely resolved. Now I am confused whether I need the medicines or not. Now the condition is hypo, I am seriously confused.

Do you have some suggestons.

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Hlo preet am also from india nd suffers from high tsh..can u pls give me ur mob. No

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Any update from your side Suman25, Preet18 ? How was your preg?

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Congratulations on your pregnancy. Like Jackie I had 3 children whilst untreated for underactive thyroid and all three are fine, with children of their own. Every mother worries about her child, unborn or afterwards, that's what being a mother does for you, and I'm afraid it's a life sentence :)

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i am 12 week pregnant . having euthyroxine 50 m since 1 month and before 2 month i was having 25 mg. On my routine blood check on my 11th week, my tsh extreamely high range @ 45. after to days on recheck it found 26.7 . Imeediately my endocrinologyst adviced to have 150 mg euthyroxine and I m having it now. During this days I am so thirsty and drinking water every 5 minutes :-( and having pain on abdomen left side and right side frequenly.

I am so tensed that this abnormal TSH level change will affect my baby's growth ????

Please advice .....

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I'd love to hear an update! I currently found out I was pregnant and wasn't being treated for hypothyroidism! At that time I was eight weeks pregnant started on 125 mg & on May 26 my thyroid was tested my TSH was 26.080 they immediately up my dose 150. Now I am being sent to a high risk OB doctor Tuesday June 9th 2015 to make sure the brain developments are okay with my unborn child!! I have been worried sick over this!!

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Hope u had a healthy baby

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Hi. I have the same problem. How did it go after? Pls advise

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How much was your TSH?

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Hope u had a healthy baby

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Can you pl update on this now? I am in similar situation in first trimester of my pregnancy. Your update on current situation will help me a lot.

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Hi kellyjane04... I went through post.. I want to know how is ur babay now... please reply.. I want to share ur experience...

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Hi ladies. I know this post is pretty old now, but would anyone please please tell me how your babies are doing???

My TSH reached 8 in my first trimester.. I don't know how long it was that high, but I'm guessing for about a month... the doctor quickly regulated my dose when he found out, and now it's just fine. I'm just worried sick that I might have damaged my child's brain... the thoughts seriously keep me up at night

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Katrine -

I am in the same boat:(  Before my pregnancy, ,my TSH was 2.3.  I am two weeks pregnant and my TSH is 8.3.  I had my thyroid removed many years ago for Hashimoto's and my TSH levels have been very stable on synthroid until the pregnancy.  Now they increased my synthroid from 88mcg to 112 mcg.  

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Hi

Same thing here. Any news?

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Plz tell me howz ur baby doing

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Any updates to ur case?? I have been pregnant for 8 weeks with TSH 8! Im so concerned about the baby's health. I'm just repeating some blood tests and will be on medication in a couple of days.

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Hi

What happened after with u? Pls advise

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Eveyone here is so worried on 50 tsh or 17 tsh.. my TSH level is 133.. n im 6weeks preg.. this level was about 4months ago when i wasnt preg.i was on euthyrox 50mg for 4months.now since im preg i went for thyroid test again.will get the reports tmw.keeping fingers crossed.

Would love to get updates on kids with hypothyroid mothers

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How is everything going now?

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Tsh is now under control.im taking euthyrox 100mg daily.hope it stays normal till delivery.its 26 weeks today

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Hi tobe can u tell me which dr u consults for this issue. Because i have also high tsh level approx above 100 and iam trying to conceive

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I live in dubai.so i went to dr. Vipin mishra in zulekha hospital. He has increased the dose from 100mg daily to 150mg 4 days in a week n 100mg 3days in a week.i conceived while i was having 7.45 thyroid. Just be regular with the meds n ur levels will b in control.

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Thanks dear, already i have a miscarriage on march 2017 but now i knew i have thyroid problm. So iam searching best dr for this hypothyroidism iam also live in uae.

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Dear, one more question. Dose there any side effect by this medicine. And any change in ur body

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No there havent been any side effects.but do consult a dr for changes in ur dose.because too much high dose can cause HYPERTHYROIDISM. There are lots of gud endocrinologists in uae.dont worry all will be fine in gud time.

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Thank u soo much dear for your fast replying. Iam hope so everything will be fine soon.

Should i go to dr vipin mishra?

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If u can then do try it out. I was satisfied with his treatment. N make sure to ask all ur concerned questions so that he knows ur situation cmpletly.

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Ok . Once again thank u dear.

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U r most welcome.InshaAllah all will be fine.

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Hi my wife is 15 weeks pregnant & her tsh level is 330.8 & her t4 level is 3.67 .. doctor told me that there are chances of some mental issue with the kid .. I don’t want my kid to suffer please guide me & let me know about your children so that i can take a right decision..

A worried father

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My tsh was normal in my 4th month. N i gave birth to a healthy baby boy in November. So dont worry. Go see a endocrinologist.they can guide u properly on how much the dosage shud be of thyroxine. That will help control the thyroid levels

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How is your wife now?

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Hi, I am just now seeing this thread because I too just got my bloodwork back with a high TSH but normal T4 level. Did you get on medication and everything turned out OK with your little one?

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I am still hoping for updates on pregnancy outcomes from mother's with high TSH in first trimester. Mine was 30, but my ft4 was 0.81 (range 0.93-1.7). Just fyi for you with olivia with normal ft4, the fetal maternal specialist that I saw, plus the endocrinologist, both told me that the ft4 is the number that matters for fetal development. I'm still very worried. I'm nine weeks now and my TSH came down quickly after increase in my dose. I am still very concerned though, so much so that I suspect my stress is just as worrisome as my thyroid levels. Any updates from anyone would be much appreciated.

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Hello could you please share updates about the baby health ?

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My baby is 2-weeks old now. Clearly we cannot measure IQ at this point but all other measures are normal. There is no evidence of motor deficit, or any other deficit. Best wishes to you for a similar outcome.

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How are you and your baby doing now? I am in same situation as you. please reply.

TSH 12.45 at 3 weeks. and getting higher dose now.

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I am on 75mg of med and at week 13 of pregnancy. I also really am worry about my baby too. But find out that only T4 affects the developmentof the baby, not TSH and would like to share with everyone who has the same low thyroid hormone as me to release your worry. Please read the link for more details

tiredthyroid.com/blog/2013/...

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M 14 weeks now.... at 11 weekss my tsh came out 14.85 and free t4 was in range i.e .85 .... worried a lot but after first scan everything was fyn and the baby heart beating at normal range .... I advised all moms to be....NOT TO WORRY AND TAKE YOUR MEDICINE AT PROPER TYM......

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hello varnoor. i am now on the same boat. ive been feeling all the symptoms for more than a month now thinking its just due to pregnancy symptoms. however im 12 weeks pregnant and just got blood work done yesterday. TSH is 15 and ive been prescribed a higher dose of my thyroid medication. my concern is i was checked too late and if ive affected my babys development.

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Does any one know the best dr in Uae for this hypothyroidism problm. Bcz my tsh level above 100 and iam too much worried

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Hope u had a healthy baby plz reply

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hello i would like to hear updates on your babies pls. i was recently diagnosed with hypothyroidism at 12 weeks pregnant with a TSH level of 15 however ive been feeling all the symptoms for more than a month now but i didnt get to do my blood work early enough in the pregnancy!! i totally regret it. ive had total thyroidectomy 6 years ago and have been on 75mcg levothyroxine. my GP recently increased it to 100 mcg. im worried i had affected my babys developmental growth! hope to hear some advise thank you

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Hello, this week it turned out at 7 weeks pregnancy that my TSH level was 37. I was put on 100 mcg levothyroxin. Have been taking it for 4 days now. My next blood test is in 2 weeks. Do you know how fast does it take effect ? Does the baby benefit from this immediately or it takes weeks until it takes effect? What was your experience at retesting after 2 weeks? I do hope we cought this early enough and I didn't cause any damages to my baby.

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Hi! Im 6weeks and today i found out i have hypo. My tsh is 14.01. My fetal-maternal ob prescribed me eutirox 50mcg. She told me not to worry, I will see her this monday and serch and endocrynologist too. But im worried :(; the effect will be seen aprox in 1 week, and the recomendations is to test blood every 4-6 weeks for adjust the dosis. But i think i will test my blood in 2 too. We are on time, but is impossible not to worry. Ill keep praying; and please tell me how you are doing

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I wish I had worried less when I was in your position. I now have a healthy, very smiley, 7 week old baby. I’m sure the worry was more damaging than my thyroid issue. I lost 10 lbs in the first month from worry. Eat, rest.

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