long time no see I've been busy trying to fully regain my 10% of lost health, where the Erfa, or indeed the thyroid, may not be to blame.
Still struggling with ectopic heart beats, headaches just as the back of my head near neck and very tired eyes. As I have Graves, tested for thyroid eye disease but ruled that out. Endo, who is brilliant by the way, wants to rule out Myasthenia Gravis. If that is ruled out, a neurologist. I however, am convinced it's B12 deficiency, despite my bloods showing not. One auto immune condition often begets another and Graves is often linked with pernicious anemia. Am considering travelling to London for the Active B12 test if it's not available at my local Nufflield by end of January.
Have also joined forces with two lovely women who have had epic struggles with this illness and put in a petition to the Scottish Parliament and there is a BBC health journalist looking in to this issue for us. Whether she does anything with it remains to be seen but we have to try. My lovely endo, who I see privately but who works in the local NHS hospital, has offered, actually OFFERED, to write a letter backing up our petition. So, not all bad. Just wish I could get to the bottom of these residual symptoms. Gently trying to increase my Erfa from 2 grains to 2 and a half. Nerve wracking...
Hope you all manage to have a happy and healthy Christmas, change is coming xxxx