Hashimoto's & disappearing antibodies?? - Thyroid UK

Thyroid UK

141,244 members166,489 posts

Hashimoto's & disappearing antibodies??

Tracey76 profile image
7 Replies

I was first diagnosed with an underactive thyroid when I was 7 years old, I was then diagnosed with Hashimoto's 6 years ago with an antibody reading of 1:102,400 (which is rather high). I've just had my results back with antibodies within normal range...

Is this possible?

My doctor is now sending me to a new endo... I'm trying to be thankful for small mercies and am struggling to do so... :'(

Written by
Tracey76 profile image
Tracey76
To view profiles and participate in discussions please or .
Read more about...
7 Replies
RedApple profile image
RedAppleAdministrator

Interesting question! I had antibodies >1,000 at diagnosis. But they haven't been tested since. GPs don't seem to think it matters as you still need to 'keep taking the tablets'.

Tracey76 profile image
Tracey76 in reply toRedApple

Thats what I've been told for routine blood work but as my symptoms are coming back full force I need all angles covered.

Its just so unusual, I asked my doc why and she said straight away that she would like to refer me. it clearly puzzles her too!

I'm now starting to think that my thyroid has stopped working altogether and thats why the antibodies have dropped? No thyroid means no reason for them to hang about?

And if my thyroid has ground to a complete stop would it not make sense to increase my thyroxine or supplement with T3?

All these questions running round in my head - its driving me nuts! Another night of little or no sleep ahead :|

RedApple profile image
RedAppleAdministrator in reply toRedApple

I can see where you're coming from with the antibodies not having any reason to exist. Not convinced it makes any difference to the medication issue though. Assuming your dose is high enough... and you're absorbing sufficient thyroxine from your tablets... and all the bits of your body are converting to T3 appropriately, then theoretically all should be fine (yeah right).

My own theory is that if the thyroid is totally dead, then a little T3 should be added. That's what a working thyroid does... mainly T4 with a T3 top up. But trying to get T3 on prescription is like trying to get blood from a stone.

Tracey76 profile image
Tracey76 in reply toRedApple

well the letter i got from my last (private) endo said that with high antibodies he'd be surprised if my thyroid was producing anything at all and if it was it would progressively reduce over time...

so I'm guessing that might just be the case... a dead thyroid! so maybe this new endo will do a test to see if that is in fact the case.

How would they test that? scan it?

RedApple profile image
RedAppleAdministrator in reply toRedApple

I think a scan could help, but it's probably not definitive. I had an ultrasound some time after diagnosis. The chap said my thyroid showed clear signs of inflammation. Wish I'd known more about all this then... I'd have asked more questions.

I think the only other test would be to come off medication completely and test T4/T3 after a few weeks. Not suggesting you try this of course! But I don't think there's any other way to be sure.

Have you tried desiccated thyroid? Seems to be the answer for some people.

Tracey76 profile image
Tracey76 in reply toRedApple

no none of my doctors will prescribe it... :(

RedApple profile image
RedAppleAdministrator in reply toRedApple

Fingers crossed your endo will agree to add some T3 or even let you try desiccated.

Not what you're looking for?

You may also like...

Hashimoto's Antibodies

Was reading a few posts earlier and found something interesting that Greygoose said. When I was...
DaizeeFoo profile image

Hashimoto's antibodies

Does anyone know what, if anything, happens to Hashimoto's antibodies after the thyroid gland is...
marlathome profile image

Hashimoto's Man

Hi I'm new here and have found reading many of the topics and chats pretty comforting , like many...
hashiman profile image

TPO antibodies

Just looking for an opinion- I acquired a copy of my original blood test form the GP from when i...
ABro profile image

Hashimoto's thyroiditis

Hi I am new on here. I was diagnosed with Hashimoto's thyroiditis two years ago. I also have...
Suerender profile image

Moderation team

See all
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.