Feb of this year my blood results came back 1.08 I take 75 levo one day 50 the next
Previous blood result Dec2023 0.53
I was then taking 100/75 every other day
Yesterday 22 April had blood test currently on 100/75 every other day 1.84
Can't understand how it's leapt up on a higher dose
Currently have 2 monthly injections vitB12 and folate monitoring.
Appreciate your help
Previous blood result
Dec2023 0.53
I was then taking 100/75 every other day
No Ft4 or Ft3 tested
But assuming you felt ok and not over treated you didn’t need to reduce dose
So dose was reduced inappropriately to 75 levo one day 50 the next
Then in Feb this year TSH was 1.08
Dose was then increased to 100/75 every other day
Yesterday
22 April had blood test currently TSH 1.84
So get FULL thyroid and vitamin testing done
You likely ready for next increase to 100mcg daily
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune
has that been done
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Exactly what vitamin supplements are you taking
ALWAYS test early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
Post all about what time of day to test
healthunlocked.com/thyroidu...
Testing options and includes money off codes for private testing
Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee
Monitor My Health (NHS private test service) offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65
(Doesn’t include thyroid antibodies)
monitormyhealth.org.uk/full...
10% off code here
thyroiduk.org/testing/priva...
Only do private testing early Monday or Tuesday morning.
Tips on how to do DIY finger prick test
support.medichecks.com/hc/e...
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endocrinenews.endocrine.org...
In days before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70
Many thanks will ask for antibodies TPO TG Have regular checks folate ferritin b12 injection now 2 monthly now
I do exactly as you said before any of my blood test from last year
I have a problem with taking vit D just goes right through me
Not taking another vitamins
Take medication 1 HR before breakfast
Have had palpitations and sweats ECG has been done considering beta blockers
It's so confusing why my levels have jumped on higher meds when I have done exactly the same
I have a problem with taking vit D just goes right through me
So at very least especial to test annually
NHS easy postal kit vitamin D test £31 via
Aiming to maintain vitamin D at least over 80nmol minimum
Many find it better to keep vitamin D 100-125nmol
Which vitamin D supplements have you tried
Holland B vitD3 1000 IU I should be able to get blood test for vitD at surgery
You might be able to
Many GP’s don’t want to test
But no harm in asking
GP will often only prescribe to bring vitamin D levels to 50nmol.
Some areas will prescribe to bring levels to 75nmol or even 80nmol
leedsformulary.nhs.uk/docs/...
GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)
mm.wirral.nhs.uk/document_u...
But, improving to around 80nmol or 100nmol by self supplementing may be better
pubmed.ncbi.nlm.nih.gov/218...
vitamindsociety.org/pdf/Vit...
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
Test twice yearly when supplementing
Can test via NHS private testing service
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.
There’s a version made that also contains vitamin K2 Mk7.
One spray = 1000iu
amazon.co.uk/BetterYou-Dlux...
It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average
NHS Guidelines on dose vitamin D required
panmerseyapc.nhs.uk/media/2...
Vitamin D may prevent Autoimmune disease
newscientist.com/article/23...
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Vitamin K2 mk7
what were latest folate, ferritin and B12 results
Have had palpitations and sweats ECG has been done considering beta blockers
So definitely get FULL thyroid testing including thyroid antibodies
Ft4 may be too high (palpitations) but Ft3 too low
very common when on only levothyroxine
Essential to maintain GOOD vitamin levels for best conversion of Ft4 to Ft3 possible
But many on Levo, especially if cause of hypothyroidism is autoimmune thyroid (hashimoto’s) will have poor conversion rates
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)
NHS only tests TG antibodies if TPO are high
If you don’t need to retest folate, ferritin and B12
Randox FULL thyroid test including both thyroid antibodies just £31
Test at home or in clinic
Also available via Amazon
randoxhealth.com/en-GB/at-h...
Just checked vitB12 Dec 465 had injection yesterday Ferritin 2023 138
Folate 20 Dec 2024
How long before Dec test was last B12 injection
Do you have pernicious anaemia or “just” low B12
Folate - what’s the range
3-20 or 8-60 or something else
As you have B12 injections it’s recommended also to supplement a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.
This can help keep all B vitamins in balance and may help maintain B12 levels between injections
Many thyroid patients have low B1 (thiamine) for example
B vitamins best taken after breakfast
Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need 2 per day and/or may need separate methyl folate couple times a week
Post discussing different B complex
healthunlocked.com/thyroidu...
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endocrinenews.endocrine.org...
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70
I have the injection every 2 months now for vitB12 and prescription folate Have injections now for a year no antibodies for PA but it's in the family.
Will certainly take your advice as it was spot on last time I contacted you sending econsult tomorrow to doctors plus I do have psoriasis lichen planus been under consultant for some time just does not heal
Plus at night I am so overheated
Lichen planus is autoimmune so it’s virtually guaranteed that your hypothyroidism is autoimmune
Both lichen planus and hashimoto’s frequently benefit significantly from being on strictly gluten free diet
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.
Most common by far is gluten.
Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines BEFORE cutting gluten out
nice.org.uk/guidance/ng20/c...
Or if GP unhelpful buy a test online, about £20
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
pubmed.ncbi.nlm.nih.gov/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Post discussing gluten
healthunlocked.com/thyroidu...
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
Thank you once again for information given really helps
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