I was diagnosed with Hashimoto about 5 years ago. I am still not medicated because my values are within range, but the last few years were a struggle. Weight gain, brain fog, anxiety. My TSH is growing slowly, but last time was 3 ( starting from 0.9 a few years ago) still not high enough for my GP.
in the past few months I started to get really puffy face and swelling around my eyes especially when I woke up. Can’t really point out the trigger.
My GP suggested allergy tests as well as having my TSH done, however I decided to do all my thyroid tests privately and try to get to at the bottom of this.
Also, in my family there are quite a few cases of Graves on my dad’s side, 3 of his brothers and sisters have Graves and my dad has rheumatic arthritis.
Are there any blood tests that you recommend?
Thank you!
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LorenaM
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Will have the vitamins tests and thyroid done and post the results here.
I’ve never had the coeliac test done, but I do have a very sensitive stomach and cannot tolerate too much gluten - although I eat it 😆
Also, my eyes are extremely dry and uncomfortable and one of them looks bigger in pictures. ‘I’ve seen this asymmetry a lot when I googled I was thinking about TED, but I know that’s more common with Graves.
I had an eye test last month, would a normal test be able to tell if you have thyroid eye disease?
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances.
Most common by far is gluten.
Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
the vitamins surprisingly are better, except for Vitamin D, than my previous ones,
Please add actual results
Exactly what vitamin supplements are you taking
High HBA1C should improve once you get prescribed levothyroxine
Suggest you see thyroid specialist endocrinologist privately
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer to NHS
Thank you Kerry! I wasn’t thinking about that TED because one of the endo said it is very likely that I went from hyper to hypo - that would explain my sudden weight loss a few years go - and I did notice a change in my eyes too somehow. I do wear contacts lenses and I have very dry eyes in general, so that doesn’t help.
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Hashimoto struggling
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Severe Facial Edema Results
