I've had an issue with low TSH -Jan25TSH 0.16 normal range (0.35-5.00)
Free T4 18.3 normal range (11.0-23.0)
T4 was also going down as well. The gp wanted to reduce my meds again to 7days@75 Levothyroxine (From5days@100 Levothyroxine and 2days @75 Levothyroxine). I asked if it would affect my slow bowel transit and ME/cfs. As I wouldn't like to get worse as reducing it had already made an impact on my health
Sept'24 7days@100 Levothyroxine
TSH 0.22 (0.35-5.0)
FreeT4 21.0 (11.0-23.0)
He said oh we have to treat you as a whole person! Bite tongue. I read my notes over the phone about the high cancer antigen results and a scan results showed nodules/possible goiter in 2009. He'd get me re scanned and get endocrinology advice. Scanned within a week results back same day, advice thru all sat waiting in nhs file but no text from gp. Scan has incidental parathyroid adenoma? I have/had so many of the symptoms for years, including passing out with local anesthetic.
I phoned the gp 2 weeks to wait for my appointment.
Does anyone have advice? Will this make my TSH low?
Thanks
Written by
ricochetsmum
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So first step is to refuse to reduce dose while you get FULL Thyroid and vitamin testing done privately
As you have already benefited from gluten free and dairy free diet you likely have poor conversion of Ft4 to Ft3
If Ft3 is low vitamin levels likely low too
EXACTLY what vitamin supplements are you taking
Very important to test at least annually
Ideally test vitamin D twice a year when supplementing
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
No vitamins or T3 test results on my file. But i recall i was low on vit D at one point and I try to take it regularly now.
2008 tested TPO 1213 (0-50) I have been treated by an homeopath for some years due to local health service treatment. But I hadn't seen some results to tell him about.
I wondered if I have two separate issues, as I hadn't realised they treat parathyroid separately to the thyroid - by the incidental finding of the adenoma.
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