Parathyroid adenoma - incidental? Cause low TSH? - Thyroid UK

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Parathyroid adenoma - incidental? Cause low TSH?

ricochetsmum profile image
2 Replies

I've had an issue with low TSH -Jan25TSH 0.16 normal range (0.35-5.00)

Free T4 18.3 normal range (11.0-23.0)

T4 was also going down as well. The gp wanted to reduce my meds again to 7days@75 Levothyroxine (From5days@100 Levothyroxine and 2days @75 Levothyroxine). I asked if it would affect my slow bowel transit and ME/cfs. As I wouldn't like to get worse as reducing it had already made an impact on my health

Sept'24 7days@100 Levothyroxine

TSH 0.22 (0.35-5.0)

FreeT4 21.0 (11.0-23.0)

He said oh we have to treat you as a whole person! Bite tongue. I read my notes over the phone about the high cancer antigen results and a scan results showed nodules/possible goiter in 2009. He'd get me re scanned and get endocrinology advice. Scanned within a week results back same day, advice thru all sat waiting in nhs file but no text from gp. Scan has incidental parathyroid adenoma? I have/had so many of the symptoms for years, including passing out with local anesthetic.

I phoned the gp 2 weeks to wait for my appointment.

Does anyone have advice? Will this make my TSH low?

Thanks :)

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2 Replies
SlowDragon profile image
SlowDragonAmbassador

Reading your previous post as well

No vitamin results or Ft3 or thyroid antibodies

So first step is to refuse to reduce dose while you get FULL Thyroid and vitamin testing done privately

As you have already benefited from gluten free and dairy free diet you likely have poor conversion of Ft4 to Ft3

If Ft3 is low vitamin levels likely low too

EXACTLY what vitamin supplements are you taking

Very important to test at least annually

Ideally test vitamin D twice a year when supplementing

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

ricochetsmum profile image
ricochetsmum in reply toSlowDragon

Thanks for your links and tips.

No vitamins or T3 test results on my file. But i recall i was low on vit D at one point and I try to take it regularly now.

2008 tested TPO 1213 (0-50) I have been treated by an homeopath for some years due to local health service treatment. But I hadn't seen some results to tell him about.

I wondered if I have two separate issues, as I hadn't realised they treat parathyroid separately to the thyroid - by the incidental finding of the adenoma.

Thanks ;)

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