I check in weekly and have learned so much from everyone. I live in the US still we have a lot in common. I waited months to see an endo. The point of the appt was to review my labs and make any suggestions on meds and see if my GP was on the right track. She is concerned as my weight is the same although I am in a calorie deficit and exercise (tennis and weight training)She has tested my cortisol and it is high and I had a Dex suppression test that was a little over the cut off. The endo did not look at my labs at all. He was not interested in reviewing my thyroid meds. I am on levo/ lio smaller doses of both. I’m also on top dose of a GLP1 for weight loss and haven’t lost anything. I am overweight. The endo said women like to sit on the couch and emotional eat and expect a magic pill to help them loose weight. He told me I should try an app to log my food and try exercising once in a while. I’ve worked with a dietician and have logged my food for 3 yrs thank you. He never asked how I felt or what I have tried. I did tell him that once I started the T3 I felt better and my hair started growing back, even on my arms. His only comment was why do you want hair on your arms?He wanted to do a workup for Cushings but I don’t have any symptoms except the cortisol. I did not accept a f/u appt with him.
My GP has ordered 13 lab tests ( all blood work no vitamins this time) and another dex suppression cortisol for April and will see her after the tests. I read that hypothyroidism and high cortisol can be related. I started taking Ashwaganda and phosphatidyl serine along with my Vit d,magnesium and B12 drops 50 mcg Levo and 7.5 Lio GLP1 15 mg daily. Anyone else have issues with cortisol and what did you do?
Thanks!
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Goldenrescuemom
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I’m so sorry your endo appointment was disappointing. Many of his responses appear rude and unprofessional. Are you able to make a complaint?
I understand from your last post 5 months ago you had a slight increase in T3 medication, although Levothyroxine remains at 50mcg. How long have you been on this slightly increased dose? Will this be your first blood test after the dose change?
Hopefully members with knowledge of cortisol will be along soon to advise.
Thank you. He was insulting really. He had even more rude comments other than what I included here.
I’ve been on the increased dose ( went from 5 to 7.5 taken in 2 doses ) of T3 for the 5 months and no labs since then. My GP thought the endo would draw thyroid labs but that did not happen.
I'm extremely angry right now on your behalf. I hope you did not also have to pay (after waiting for such a long time) for being insulted and humiliated. I also hope that your GP does pick up the slack and takes things in hand after that fabulous fail. The endo obviously was beyond useless. Once your GP does a full thyroid panel (FT3, FT4 and TSH) and B12, vitamin D, iron panel and folate, please post the results here and you will get all the information you need. Best of luck.
Sorry to hear your appt was disappointing. Not sure I can help you at all. I am in the UK & probably very controversially so, am looking to get off my Levo. Its not doing what I had hoped it would & I have been on it for 20 years. I do actually query a mis diagnosis by GP all those years ago. Not that I was expecting Levo to be a magic weight loss pill, but when you half starve yourself, do moderate exercise etc, & still the weight does not come off with Levo, how can the meds be helping. Really sorry I cannot help yuo & as I say I am trying to get off my Levo as it clearly is not doing its job for me. Good luck going forward.
I have Frontal Fibrosing Alopecia and T3 has not helped. According to one Dermatologist, "my follicles are asleep...." No shampoos or vitamins help either. I either wear headbands or wigs. I had a paternal aunt who had the same, though not as serious as mine, and Granny on my mother's side had very thin hair. She did the comb over. It's difficult to find Endo's in Tennessee as well under my current insurance. I see my GP who listens to me and agrees with my treatments. You have to train them. It's a chore, but worth it. You can always sign up for those Alopecia research gigs. Go to naaf.org/studies/ to check out their studies.
*The endo said women like to sit on the couch and emotional eat and expect a magic pill to help them loose weight.*
Wow! What an absolute nerve! Who does he think he is? Agree with ArTistapple two separate complaints.
I’m just sorry I didn’t reply to your post before you went and say I always say to people not to expect anything much from an endo visit and then you won’t be disappointed, because I would say out of all my endo visits when I was being treated for Graves I only had one really inspiring visit, the rest were varying stages of mediocre. Your consultant takes the biscuit though doesn’t he!
Good luck with it all, hopefully you will find the answers you need soon.
I believe the great majority of us in the US don’t bother with an endo but work with our primary care provider - an MD, NP or, for many, a Gyn. After my TT for thyroid cancer, I fired five endos and finally gave up. (The one good one moved to Johns Hopkins.) I work with my NP; she’s very generous with my prescribing (I take NP Thyroid) and I adjust up or down depending on how I feel.
Looking at a previous post, I see your PCP tested Total T3 — you need to make sure she is testing Free T3, not Total T3. . And that TT3 result was very low - only 5% into range. I doubt another 2.5 mcg of liothyronine is going to help that much. Do you have a later set of labs? The ones from last fall show you have room to increase both T4 and T3; personally, I prefer keeping my T4 on the lower side and FT3 in the upper part of the range. You might want to look at this thyroidcanceradvocates.net/... and see if your doc isn’t open to trying something like 15 mcg (5 kcg x3) and letting you “experiment” a little bit. 15mcg would be a very reasonable dose to work up to (slowly) and you might not even need/want that much. Some have printed/shared the page with their docs with positive results. Whatever you thonk you and she would be comfortable,with.
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My labs after TT: Grave’s
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