1st post

[Calmspirit1]

I was diagnosed with graves and had rai 8 years ago.I've was on synthroid 137 4times a week and 150 the other 3 days.

In November started feeling hyper. Lowered 1 150 to a 137..

Continued feeling hyper, dropped another so now at (6) 137s and (1) 150.

I have tremors and shakes. Palpatations and heart arrhythmia. Tachy, multiple bms each day, can't sleep, tears, etc

As I have lowered pills the ft3 and ft4 have risen and the tsh lowered.]

Been to Dr. multiple times, no treatment.

Ft4 range( .65-1 44 )mine was 1.5

Ft3 (2-3.5) 3.05

Tsh (.340-4.820)1.779

And oddly fasting glucose (70-105)114

Glucose has never ever been high.

I'm living in hell

Usually my ft3 is 2.4 and I'm fine there.

Anyhow dr says I can lower synthroid as I wish.. so how much do I need to lower it and what would cause this?

Thanks so very much

[Regenallotment Ambassador]

I would lower synthroid again to 125mcg a day. (When this happens to me I lower by more for one week to stop all the symptoms and then go back up to the new lower dose a week later).

It is awful feeling over replaced I hear you. But you can control it, just be careful to stick to one dose for 6-8 weeks once you have done a week on a lower dose to reduce the symptoms. Good luck 🙏

[Calmspirit1 in reply to Regenallotment]

Thank you very much. I have lowered for this week and next week will try 6 (137) and 1(125) and hope for the best. Do you have any idea what may have caused this? I don't want to go through it again. I ended up being placed on diltiazem to control the arrhythmia and it was rough. I am still shaky.

This last week I did a wide variety of doses, Sunday 137, Monday 112, Tuesday 112 Wednesday 137, Thursday 75

Do you think lowering to 1 125 and the rest 137 will be enough?

I literally have no guidance on this. I have happily been on the 3(150) + 4 (137) for many years. I am struggling with the lack of support from Dr.

Thanks so much

CS

[Regenallotment Ambassador in reply to Calmspirit1]

It can be so many things for me, warmer weather, stressful events, body changing over time, interactions with other hormones, vitamin levels improving, for some it’s a batch change in supply, I’ve not had that, can be change of brand too.

Oh and the autoimmune element of Graves or Hashimoto’s of course!