NDT struggles: I’m honestly so so fed up of... - Thyroid UK

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NDT struggles

RoseStar profile image
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I’m honestly so so fed up of feeling rotten all the time. All my vitamins are now optimal bar ferritin (which I’m working on) and I still feel no better. I was on 125mcg Levothyroxine and still felt symptomatic so switched to NDT. Anyone else react badly? I can’t even take 1/2 grain without feeling lightheaded, headache, nauseous within 30mins of taking it!!

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RoseStar
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Regenallotment profile image
RegenallotmentAmbassador

oh no poor you, this sounds rough.

Low ferritin could do that.

You could also be under/over replaced. How long have you been on NDT? Any recent blood test results?

radd may have come across this before

RoseStar profile image
RoseStar in reply toRegenallotment

A month and feel all over the place - I tried to get to 1 and 3/4 grains. Not yet - pharmacist requested bloods in March. Thinking I might try 75mcg Levo and 1 grain of NDT.

Hookie01 profile image
Hookie01

I also have low ferritin, can't increase it due to fatty liver. Trying NDT (NP Thyroid) currently on 3/4 of a grain but getting bad pins and needles at night. But can’t go over 75mcg of levo either or I get headaches. Liver hurts and it's possibly cos of low Thyroid, in a bit of a mess right now and don't know what to do.

Regenallotment profile image
RegenallotmentAmbassador in reply toHookie01

Hey Hookie,

Best thing for you would be to start a new thread with the info you have given above and get your own tailored input from forum members.

You will get more views that way than in a reply to another member’s post 🤗

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