link with HCM and T3

[Annie100zain]

I have been treated for Hasimotos since I was 19, now 64 and taking 150mcg thyroxine daily. I’ve read and learnt so much from this forum about Thyroid issues and I am wondering if anyone knows of a link between HCM and lack of T3?. My GP stopped my T3 about 5/6 years ago, saying that it was bad for the heart. I started having chest pain, palpitations, dizziness and have spent the last 5 years trying to get a diagnosis. Finally I now have a diagnosis of HCM. Could this thickening of the heart be due to a lack of T3? Any ideas or suggestions or information would be greatly appreciated. My consultant is very vague about a link with Covid being responsible. Many thanks for all the advice on this forum

[traveltime]

hi, I’m not medical and have no direct experience,but my understanding is that t3 is essential for heart function, and your lived experience seems to confirm? Do you have latest (or series of) thyroid tests including t3? I asked an AI engine about a link between hcm/t3 and it gave me pages explaining Heart function and why a good t3 is essential for heart function, esp for hypos, including using t3 as an hcm therapy. I’d be tempted to print the ai output (with reference sources) and give to the doctor for discussion/homework.

[Annie100zain in reply to traveltime]

I haven’t had any private blood tests for over a year but when in hospital last October for a suspected heart attack ( it wasn’t a heart attack but HCM)they did a TSH and it was 0.6 min/L

[Annie100zain in reply to Annie100zain]

Sorry , typo. That’s 0.6 miu/L

[traveltime in reply to Annie100zain]

Any ft4/ ft3 ? If this started after t3 was removed then all tests before/after that are relevant to see the process. If you’ve got the nhs app you should be able to see any/all previous blood tests. My father’s heart issues were definitely from lack of appropriate hypo treatment.

[Annie100zain in reply to traveltime]

My last Medichecks from September 2023 are TSH1.12mui/L, free t3 3.3pmol/L, free thyroxine 18.6pmol/L, thyroglobulin antibodies 48kiu/L, thyroid peroxidase antibodies <9kiu/L, ferritin 67ug/L, folate serum 23.4nmol/L, vitamin b12 49pmol/L. All inside normal ranges

[Jaydee1507 Administrator]

I'm not sure what HCM is.

[RedApple Administrator in reply to Jaydee1507]

Hypertrophic cardiomyopathy bhf.org.uk/informationsuppo...

[helvella Administrator in reply to Jaydee1507]

For anyone struggling with abbreviations and acronyms:

helvella - Abbreviations, Acronyms, Latin

A document containing a list of many of the abbreviations, acronyms and Latin terms you are likely to find when reading documents about thyroid. Don't assume an old copy is up to date!

dropbox.com/scl/fi/jks8k4c3...

Last updated 28/12/2024

helvella.blogspot.com/p/hel...

[Annie100zain]

my CRP HS was 4.05, which I think is quite high?

[Jaydee1507 Administrator in reply to Annie100zain]

You havent given the referencee range but it looks fairly low to me.

[AKatieD]

York Cardiology's consultant, Sanjay Gupta, has some short Youtube and Facebook channel videos on hormones and the heart, with one on hypthyroidism, that are worth a watch

[Annie100zain in reply to AKatieD]

thank you, I will take a look