Hi, This is my first post. Have been on Levothyroxine for about 12 years for Hashimoto's. Ok for 5 years, but last 7 years, progressively worse with lots of misdiagnosis as well as unnecessary medications causing other problems. Have finally been able to piece together the puzzle of what might be happening thanks to UK websites and people willing to impart information. I was feeling like I was a total neurotic, with so many unexplained really nasty symptoms. Until recently I had just accepted all the other diagnosis, even though I knew I felt really strange when taking levothyroxine. I just didn't make any connection because my GP went by the TSH results alone, and I was diagnosed years ago, when I had no access to the internet or other help, therefore lack of knowledge and understanding. I have been so busy trying to hold down a job and look after my family that I forgot about myself, until I couldn't ignore things anymore, and started to do my own research. I'm annoyed at myself for not finding time to do this research before now, however hindsight is a wonderful thing. Everyone mentions the awful brain fog and confusing symptoms which is difficult for a patient to comprehend as well as busy GP's who often don't have time to look at you in a holistic way, therefore completely miss the problem. I realise now that I may have been having symptoms of over medication, and asked for my dose to be reduced to 75mcgs. But had to have two different manufacturer's and have experienced rashes and hair loss. Not only hair loss, but an unbearable heat and itching plus headache on top of my head. I had one episode of similar problem 5 years ago when Lansoprazole was prescribed and seemed to trigger hair loss and photosensitivity. The photosensitivity and increased allergies has stayed with me, although the hair loss improved until I recently changed my levo dose and manufacturer. Difficult to know if it's change in dose, different manufacturer ? different fillers or both. Can anyone tell me what brand of T4 they like best, and also what brand of T3 is most commonly used. Or can you get combined T3 and T4? I'm seeing an Endocrinologist next week for the first time privately as I felt I was getting nowhere with the NHS system. Sorry about the long post. Thanks.
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