Tsh of 0.2 t4 of 11,former hypothyroid but now not sure,on 160mg of Metavive 11,what dose should I have?

[kymkat]

Have been dx with Hashimo's 15yrs,also have M E/Fibro Sjogrens,asthma,excema,gallstones, kidney stones,diverticulitis,back issues,fatigue has been so bad but it looks like ive gone hyperthyroid?

[greygoose]

If you are hypo it is a physical impossibility to 'go hyper' - unless you are on a Hashi's 'hyper' swing. And that is only temporary. But, with a TSH of 0.2, it seems unlikely.

To comment on the FT4, one would need the range. Unless the range is unusual, it doesn't look very high.

I don't think anyone can advise you on a dose of Metavive because no-one has any idea how much hormone it contains - or even if the hormonal content is consistant. It all a bit hit and miss and is usually taken along with some other form of thyroid hormone replacement, I believe.

But one thing is certain: if you have Hashi's you will eventually be hypo for life when the thyroid has been totally destroyed. There are no 'former hypos' with Hashi's. Sorry.

[kymkat in reply to greygoose]

Sorry,yes I have Hashi's,sometimes I can't explain myself properly due to brain damage,have used Metavive since stopped being able to get NDT from Thailand and it seems to have worked OK over last few years but I need to know whether I should adjust my dosage or just leave as is?Thank you for your reply.

[RedApple Administrator in reply to kymkat]

kymkat, 'I need to know whether I should adjust my dosage or just leave as is?'

No-one here can advise you on whether you should adjust your dose. This is an OTC supplement with no declared thyroid hormone content. Any answers would therefore simply be based on guesswork, which is not going to help you at all.

[kymkat in reply to RedApple]

It contains porcine thyroid so although marketed as a supplement it surely is a replacement therapy because it works for me usually, thinking back I was dx with a node many years ago and it may be possible that this is the issue,at the time the endo dismissed it as not worth his breath due to its size and gave zero recommendation regarding it.As I have so many bodily issues it may turn out that thyroid is nor the problem at all but it would be wise to rule that out.

I do really appreciate the help, thank you

[RedApple Administrator in reply to kymkat]

'although marketed as a supplement it surely is a replacement therapy '

Yes, we are aware of that. But without information about the actual amounts of T3 and T4 in each capsule, it's impossible to give any suggestions about dosing.

'As I have so many bodily issues it may turn out that thyroid is nor the problem at all but it would be wise to rule that out.'

To potentially rule out thyroid as the cause of your issues, you would first need to get a full thyroid blood test done to see where your levels of FT3 and FT4 are currently sitting. With that information, suggestions could be offered as to how you might proceed.

[greygoose in reply to kymkat]

You may need to know that, but as I explained, no-one can answer that question. You can only go by how you feel. And if you're self-treating you should know your body well enough know if you need more or less. If you don't, then you just have to experiment. It's all trial and error, anyway.

[kymkat in reply to greygoose]

Thank you.

[greygoose in reply to kymkat]

You're welcome.

[Noelnoel in reply to kymkat]

To make meaningful suggestions your most recent lab results need to be seen, including ranges

I’ve taken Metavive for 6 years and if I feel overmedicated I reduce my dose very slowly until I feel better. Sometimes I feel better immediately but at others I might need to reduce further. Conversely, I increase the dose slowly if I’m feeling undermedicated. You may also experience the need to alter dose during seasonal changes. During the winter I increase my dose slightly when I start feeling cold then reduce again in the warmer weather because I overheat!

Your optimal will be different to mine so it’s a personal matter as to what your dose should be. We achieve that knowledge with experience and trial and error

You should have your levels checked periodically but I always do mine after a 6-8 week period on a dose change

Good luck

[SlowDragon Administrator]

you need to do full thyroid and vitamin testing at least annually

Obviously just testing TSH and Ft4 is inadequate

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Very important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

Essential to test vitamin D, folate, ferritin and B12

Lower vitamin levels more common as we get older

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

What vitamin supplements are you taking

Also VERY important to test TSH, Ft4 and Ft3 together

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

….day before test split your medication as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Monitor My Health (NHS private test service) offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65

(Doesn’t include thyroid antibodies)

monitormyhealth.org.uk/full...

10% off code here

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[kymkat in reply to SlowDragon]

Thank you for the help,I've had full panels done twice and other than high D levels nothing significant, I'm trying to rule out whether it's thyroid making me feel so ill because I know Dr's interpretation of results is not always accurate for many reasons.I appreciate the help.

[SlowDragon Administrator in reply to kymkat]

Suggest you add most recent results and ranges on here

Members can comment on next steps

[Hectorsmum2]

It sounds like from the description you give of yourself as having fibro, back ache, ME etc that you are not optimally treated.

[kymkat in reply to Hectorsmum2]

Thank you for help.

[radd]

kymkat,

I agree with Hectorsmum2 that with all those conditions you sound under medicated.

Tsh of 0.2 t4 of 11

Also your results on the surface indicate you are under medicated, although as you haven’t supplied the ranges this cannot be confirmed.

Some members do great on Metavive whilst others don’t and then it can be difficult to think straight with a hypo brain.

If you don’t feel over medicated, are you able to increase your dose?

Have you tried medicating Levothyroxine?

[kymkat in reply to radd]

Hi,yes I couldn't convert levo hence using NDT ,yes I can increase and have ordered more thank you.

[radd in reply to kymkat]

kymkat,

Because Metavive is not a regulated NDT, some members do better just adding a bit to their Levo to help with T4 to T3 conversion. Dr Peatfield was a big advocate of this.

Have you tried combining ?

[kymkat in reply to radd]

No I haven't tried that but thanks for the advice,I'll bear that in mind.