Help me understand whats going on with my Iron?? - Thyroid UK

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Help me understand whats going on with my Iron??

Batty1 profile image
13 Replies

Help me understand whats going on with iron.

6 months ago I had an Iron Transfusion because my Iron has been so low for so long. Recently I haven’t been feel so great having issues again with breathlessness and my finger joints started to hurt (chalked that up to Psoriatic Arthritis) anyway I just had my 6 months Iron panel recheck done to see how the iron infusion was doing and thinking I was anemic again only to get hit with these results below …

Should I be concerned about these results because Im finding them very odd considering I eat a pretty high veg diet vs. red meat and the breathlessness is driving me crazy along with excessive fatigue and knuckle pain (I read it could be Iron Knuckle?)

Ferritin- 154 (13-150) (6 months ago it was 20)

Iron-92 (37-145)

TIBC- 279 (182-416)

Iron Sat- 33% (15-150)

UIBC- 187 (112-347)

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Batty1
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13 Replies
GlowCoach profile image
GlowCoachAdministrator

A quick google told me that breathlessness can be linked to psoriatic arthritis. verywellhealth.com/psoriati...

It may be nothing at all to do with thyroid or iron.

Batty1 profile image
Batty1 in reply toGlowCoach

I understand the PSA but what is going on with my raised Ferritin levels its been 6 months wouldn’t Ferritin levels start to drop … At least thats what my doctor said would happen… Prior I couldn’t get enough ferritin and now It’s out of range.

GlowCoach profile image
GlowCoachAdministrator in reply toBatty1

I've had an iron infusion myself - its good stuff!

Initially iron & feritin levels will be wildly high but over the next few months will begin to settle to more normal, but good levels.

I had my iron infusion around 3 years ago and my levels are still good, although I am a meat eater. Many people find an iron infusion can last quite some years but probably an individual thing.

Time to sit back and enjoy having good iron levels. :)

Batty1 profile image
Batty1 in reply toGlowCoach

So I shouldn’t be alarmed then?

GlowCoach profile image
GlowCoachAdministrator in reply toBatty1

No not at all. Your infusion was a success.

jgelliss profile image
jgelliss in reply toBatty1

High Ferritin may be from some inflammation that is going on. Check your liver too l.Best wishes.

radd profile image
radd

Batty1,

Your iron results are fabulous.

All these figures can fluctuate slightly so just over-range ferritin is fine. It just means you have an excellent supply of iron in storage. Other stats show iron mechanisms to be working well 👍

Batty1 profile image
Batty1 in reply toradd

Cool than I don’t need to worry

radd profile image
radd in reply toBatty1

I wouldn’t.

Iron knuckle/iron fist’ is a classic symptom of years of iron overload when ferritin levels may hit the thousands. You are not in this bracket Batty 😊

BB001 profile image
BB001

Raised Ferritin can be due to inflammation. Given that your other iron results are fine, it looks like it's nothing to do with your iron levels.

Mednews4 profile image
Mednews4

in the past, I experienced breathlessness and also had an iron infusion. However, I also had low vit D and B12. After taking D3/K2 and B12, mine disappeared . Have you checked all vitamin levels? Recently adding Omega 3’s also.

Suzi-B profile image
Suzi-B

I take an iron supplement daily (ferrous sulphate) they wanted to give me a blood transfusion but i refused in favour of taking a pill daily, ( i don’t like the idea of a blood transfusion when u can take iron orally) if i don’t take a daily dose of iron i feel fatigued too! i don’t understand your results but i know when i had my blood tested it was 6.5 which is low in iron and i was told to rush up A & E

klr31 profile image
klr31

I've experienced air hunger when not on the correct optimal dose of thyroxine.

Karen

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