I haven’t taken my medication in 6 weeks or longer to be honest yet I had my TSH and T4 done and perfectly normal.
TSH: 1.47 (0.4-5.7
T4: 18 (11-20)
My vitamins were also supposedly fine despite me not taking any supplements I only stopped because my depression got so bad I just wasn’t taking anything but why are these bloods so perfect yet I still like shit. Something has to be wrong surely.
What wss your last hormone dose?
You need to have FT3 tested with FT4 to get the full picture of your thyroid function
FT3 is the most important result because it is the active thyroid hormone...medics often don't understand this ( poor undergrad teaching!!) so clues to correct medication are missed
For good health every cell in the body must be .flooded with T3 by way of a constant and adequate supply
Your bloods are not perfect if your medication is wrong and not resolving your symptoms
In your shoes I would do another test asap to include TSH, FT4 and FT3, post the results and then we can see where things are going wrong
Private testing info...
The following link takes you to one of the cheapest and reliable basic tests. The lab is used by the NHS so doctors can't knock it back as a dodgy unreliable test off the internet....which some have tried to claim
monitormyhealth.org.uk/thyr...
I suspect you are not adequately converting T4 to T3 resulting in a low FT3.....which results in poor health
This test will check for that
High FT4 with low FT3 = poor T4 to T3 conversion which requires the addition of a little T3 which has to be prescribed by an endocrinologist. Your GP should refer you to an endo if that is the case
Post these labs on the forum and hopefully your journey to recovery starts with the results
If you are hypothyroid then you must take replacement thyroid hormone for life
We're all here to help....just ask.
Good luck!
PS Anxiety and weight gain are text book symptoms of hypothyroidism
Heart issues likewise can signal same
The heart needs a great deal of T3
Thank you for the response I’m going to try get one but it’s £70 to get it done, is there a discount or anything to help I really need to get to the bottom as now I’m too scared to take Levo as my level is for some reason lower despite not taking any meds for 2 months
This is the test I linked above it costs £32 from Monitor My Health
monitormyhealth.org.uk/thyr...
Discount code is THYROIDUK10
With a bit more info I'm also now suspecting that you have had high FT3 with "normal" TSH and FT4 in the past
This indicates a failing/ struggling thyroid which needs to be initially medicated with levo and if poor conversion still shows then with added T3.
Unfortunately you will experience symptoms until your hormone levels rise with replacement hormone
It's not a quick fix I'm afraid.....been there and it takes time because you can feel worse along the way until you feel better
Hang on in there....with correct medication you should be fine
You need to get back on regular medication....
Start again with 50mcg levo
Test after 6 weeks....you may feel "sh-one-t" but stick with it
Increase to 75mcg levo
Wait 6 weeks then test again. Review those results....high/low/ feel ok
Adjust the dose if necessary
You will likely need to increase again because your FT4 is falling and needs to be treated with Levo
You will need to do this with your GP who hopefully is clued up
Do you have Hashi's?
Ye, me and my sister genetic buddies. Isn’t like 90% of hypothyroidism is hashis what else could it be
It could be the other 10%: pituitary problem, damage to the gland, endocrine disrupters, etc. But as you do have Hashi's, that explains the high-ish levels of thyroid hormone.
When the immune system attacks the thyroid, the dying cells deposit their store of thyroid hormone into the blood, causing levels to rise. So, thyroid hormone levels can fluctuate all the time.
Ah ok, so should I start low again at 50 mcg and test in 6 weeks see how things change? I just don’t want where my TSH went down to 0.01 again I was very ill
Well, it wasn't your TSH that made you ill because TSH doesn't do that. It doesn't make you feel anything, that's not it's job. Probably what happened was you had a Hashi's 'hyper' swing and your FT3 went too high. It happens. But, as they don't usually test the FT3, it's difficult to know for sure.
But, yes, starting back of 50 mcg and retesting is six weeks sounds like a good plan. 
You have Hashi’s and you’re young. Was just looking at your post from a year ago (I like to get a feel for what might be happening) healthunlocked.com/thyroidu...
That’s what greygoose is thinking about. Your thyroid is most likely currently under attack from the autoimmune disease and in the process it’s causing your thyroid to send out thyroid hormones that at other times it doesn’t seem to send out at all.
The joy of Hashimoto’s. 
It’s going to be like this - hyper, normal, hypo again - off and on until your thyroid burns itself out. It might take many years, which is part of the reason for taking thyroid hormones regularly because it can switch off the feedback loop between your pituitary, hypothalamus and your thyroid. It helps keep things much more stable so you won’t keep experiencing this seesaw effect as violently.
You asked why you feel unwell—well, blood tests can lag behind symptoms. You may be sliding back towards hypothyroidism. We don’t know what your FT3 is doing—and if it’s low, a lack of active thyroid hormone (T3) will be causing the symptoms.
So I’ve actually managed to get a repeat set of bloods done for tomorrow including T3, to check if maybe it was an off result too.
Honestly I say I have hashimotos I haven’t actually confirmed it I know I’m going to get crucified but I’ve had whack TSH for nearly 4 years ranging from 0.01 (thyroytoxic shit, very scary last year) to TsH of above 30 on a range of different med levels. FT4 has always beeen around 8 (11-22) and T3 when it’s been tested has sat in the middle.
I don’t know why I haven’t specifically checked for hashi because I just can’t see what else, my sister has hypothyroidism, hashis is genetic, I live in a first world country iodine deficiency extremely unlikely. A scan I had of my chest and neck showed no issues. Like 90% it’s hashimotos just makes sense.
Does anyone worry that they’ll never get their medication “optimal”? 
Can I really need this much medication? Can I add more?!
Help with results please
Am I on right medication?
tsh changes in result but no change in medication.
